Identifying loss of dignity and lack of respectful treatment as preventable harms in health care, researchers at Johns Hopkins have taken on the ambitious task of defining and ensuring respectful care in the high-stakes environment of the intensive care unit (ICU).
Lots of potentially useful medical information is getting lost. McGill researchers discovered this when they looked into the lack of reporting of information from “stalled drug” trials in cancer, cardiovascular and neurological diseases.
A new study explores what multiple sclerosis patients know, or want to know, about their physician’s financial relationship with the pharmaceutical company sponsoring clinical trials.
A new study by a Johns Hopkins Carey Business School researcher shows that people might abandon their moral objections to organ selling – and to other transactions in repugnant markets ─ when presented with information about the potential advantages of such sales.
Penn State College of Medicine researchers contend that professional medical societies must update or amend their Internet guidelines to address when it is ethical to "Google" a patient.
As the United States population has doubled since 1955, the number of inpatient psychiatric beds in the United States has been cut by nearly 95 percent to just 45,000, a wholly inadequate equation when considering that there are currently 10 million U.S. residents with serious mental illness. A new viewpoint in JAMA looks at the evolution away from inpatient psychiatric beds, evaluates the current system for housing and treating the mentally ill, and then suggests a modern approach to institutionalized mental health care as a solution.
Medical ethicists at Johns Hopkins and Brigham and Women’s Hospital provide a roadmap to the health care holy grail of higher quality, lower cost care via referrals, while avoiding the ethical pitfalls of managed care in the 1990s
Veronica Vieland, PhD, director of the Battelle Center for Mathematical Medicine in The Research Institute at Nationwide Children’s Hospital, was recently awarded a $500,000 grant from the W.M. Keck Foundation for her research study, “Measuring the Evidence in Evidence-Based Medical Research.”
America’s youngest scientists, increasingly losing research dollars, are leaving the academic biomedical workforce, a brain drain that poses grave risks for the future of science, according to a journal article published this week by Johns Hopkins University President Ronald J. Daniels.
As Ebola raises difficult questions, ethics trailblazers answer with a road map for 21st-century nursing
Most patients with implantable cardioverter defibrillators (ICDs)—small devices placed in a person’s chest to help treat irregular heartbeats with electrical pulses, or shocks—haven’t thought about device deactivation if they were to develop a serious illness from which they were not expected to recover. But given changes in healthcare, there may be a new reason to do so. A new study led by researchers in the Perelman School of Medicine at the University of Pennsylvania, which was presented today at the 2014 Scientific Sessions of the American Heart Association, investigated patient perspectives on deactivation of these devices at the end of life, especially related to decisions to deactivate devices against patient or family wishes.
The following statement is attributable to Christine McEntee, Executive Director and CEO, American Geophysical Union:
In response to research indicating that healthcare costs go down when physicians are shown the cost of tests at the time of ordering, a pair of medical ethicists at Johns Hopkins have outlined the ethical issues that need consideration when designing and displaying prices for physicians.
The National Communication Association (NCA), the association representing thousands of the nation’s Communication scholars and teachers, will celebrate its 100th anniversary this coming November in Chicago. As has been true at many times throughout its first century, NCA will convene its members at a time when pressing global tensions are rising. And so, as it has always done, and as it will always do, NCA calls upon its members to help their students and the larger citizenry make sense of the pressing issues of the day through open debate, dialogue, and discussion.
Using the recent debate over the Facebook-Cornell "emotional contagion" study as a starting point, an international team of research ethics scholars begin mapping the ethics terrain of large-scale social computing research in PNAS.
Amid recent discussion about the Ebola crisis in West Africa, Penn Medicine physicians say that high-income countries like the United States have an obligation to help those affected by the outbreak and to advance research to fight the deadly disease — including in the context of randomized clinical trials of new drugs to combat the virus.
Hoping to encourage sufficient investments by pharmaceutical companies in expensive gene therapies, which often consist of a single treatment, a Penn researcher and the chief medical officer of CVS Health outline an alternative payment model.
Public health ethics expert Nancy Kass defends the unique treatment given to the two Americans who contracted the Ebola virus and cautions against rapid, widespread dissemination of experimental treatments.
Many of today’s technological innovations from the iPhone to electric motors for hybrid cars require the use of materials — elements — that are scarce or difficult to obtain. As demand for these devices grows, the problem of dwindling critical element supplies must be addressed. That’s the conclusion of a white paper written by eminent scientists. The product of the 5th Chemical Sciences and Society Summit (CS3), the white paper recommends focusing research on finding alternative materials and new approaches to technology development in order to prevent these elements from disappearing.
The Department of Energy (DOE) announced that it will be collaborating with the Clearinghouse for the Open Research of the United States (CHORUS) as a component of its model for providing public access to peer-reviewed articles that report on DOE-funded research. CHORUS is a collaborative service developed by the not-for-profit organization CHOR, Inc. to provide easy public access to scholarly works.
Challenging risk assessment methods used for decades by toxicologists, a new review of the literature suggests that oral gavage, the most widely accepted method of dosing lab animals to test chemical toxicity, does not accurately mimic how humans are exposed to chemicals in everyday life.
In November 2013, the U.S. Food and Drug Administration (FDA) ordered the company 23andMe to stop offering its direct-to-consumer DNA testing service, which provided individuals with $99 assessments of their genetic risk for almost 200 disorders. A thought-stimulating opinion piece published in Clinical Chemistry, the journal of AACC, now examines whether this move by FDA is a violation of the First Amendment, or a necessary step to protect consumers.
An Institute of Medicine committee has issued a report with ethics principles and guidelines to aid NASA in decision-making for longer, higher risk human spaceflights
People who care about justice are swayed more by reason than emotion, according to new brain scan research from the University of Chicago Department of Psychology and Center for Cognitive and Social Neuroscience.
Writing in JAMA, ethicists and health policy experts from Johns Hopkins, Harvard and the Center for Democracy and Technology issue a call and recommendations for better regulation and guidance of crucial quality improvement health care research.
Media Advisory: In a JAMA Viewpoint, Johns Hopkins Physicians and Bioethicists suggest five ethical considerations for Accountable Care Organizations (ACOs) to use in determining fair distribution of “shared savings”.
Shale, the source of the United States’ current natural gas boom, could help solve another energy problem: what to do with radioactive waste from nuclear power plants. The unique properties of the sedimentary rock and related clay-rich rocks make it ideal for storing the potentially dangerous spent fuel for millennia, according to a geologist studying possible storage sites. He presented his research today at the 247th National Meeting & Exposition of the American Chemical Society.
As some countries and companies roll out new rules to limit animal testing in pharmaceutical products designed for people, scientists are stepping in with a new way to test therapeutic drug candidates and determine drug safety and drug interactions — without using animals. The development of “chemosynthetic livers,” which could dramatically alter how drugs are made, was presented at the 247th National Meeting & Exposition of the American Chemical Society, the world’s largest scientific society.
Treatment regimens often evolve without strong scientific evidence of their benefits and drawbacks, particularly in comparison to other drugs or approaches. Now Duke Medicine is participating in a large national initiative aiming to fill in that missing information.
Under the right conditions, full informed consent is not ethically required for some types of health research, according to a commentary from leading bioethics experts in the New England Journal of Medicine.
To address what they call persistent gender, racial, and ethnic bias in academia, scholars at Skidmore College and Yale and Leiden universities have recommended specific, rigorous interventions that lead to positive outcomes.
A group of prominent healthcare experts including bioethicists, pharmacists, policymakers and cancer specialists have proposed concrete steps for preventing and managing a nightmare scenario that is becoming all too common: shortages of life-saving drugs.
Mark Rothstein is a University of Louisville faculty member with expertise in medical ethics and patient privacy.
Robert Baker, a professor of philosophy at Union College in New York for 40 years, is author of "Before Bioethics: A History of American Medical Ethics from the Colonial Period to the Bioethics Revolution" (Oxford University Press).
A new Q&A in the “Advancing Women’s Health” issue of Clinical Chemistry, the journal of AACC, explores the ethics of preimplantation genetic diagnosis, a form of genetic testing that has already made it possible for parents to conceive a child who is a donor match for a sick relative, who shares their minor disability (such as deafness), or to select gender.
In an early indication of lay opinions on research with induced pluripotent stem cells (iPSCs), a new study by bioethicists at Johns Hopkins University indicates that despite some ethical concerns, patients give the research “broad endorsement”.
The United States’ global share of biomedical research spending fell from 51 percent in 2007 to 45 percent in 2012, while Japan and China saw dramatic increases in research spending.
The imminent death of a patient is riddled with emotions for a patient and family as well as the medical team. A study based on the reflections of third-year Loyola University Chicago Stritch School of Medicine students is shedding light on the struggle physicians in training often face when trying to control their own emotions while not becoming desensitized to the needs of the dying patient and his or her family.
Whether from the trickle-down effects of having fewer female elders in science or the increased opportunities for male researchers to participate in international collaborations, barriers to women in science remain widespread worldwide, according to new work led by Indiana University School of Informatics and Computing professors.
To improve healthcare for children, medical research that involves kids is a must. Yet, only five percent of parents say their children have ever participated in any type of medical research.
New inventions should not have to be useful to merit a patent, says Vanderbilt law professor Sean B. Seymore.
A new study led by investigators at Beth Israel Deaconess Medical Center finds that, on average, 30 percent of all lab tests are probably unnecessary -- and equally as many necessary tests may be going unordered.
Johns Hopkins bioethicist Nancy Kass is a guest editor of AJPH special issue taking a comprehensive look at the current ethical landscape of human subjects research with minority populations
A new analysis of 585 large, randomized clinical trials registered with ClinicalTrials.gov finds that 29 percent have not been published in scientific journals. In addition, nearly 78 percent of the unpublished trials had no results available on the website, either.
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