Latest News from: Malignant Hyperthermia Association of the United States (MHAUS)

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Ryanodex, Malignant Hyperthermia Association of the United States, malignant hyperthermia, North American Malignant Hyperthermia Registry, University Of Pittsburgh

What Malignant Hyperthermia Association Says About Ryanodex

The discovery and subsequent introduction of dantrolene in 1979 was a major breakthrough in the treatment of malignant hyperthermia (MH) that is responsible for saving hundreds, if not thousands, of lives. However, one of the major challenges in the successful treatment of MH is the need for rapid mixing, suspension, and administration of dantrolene during a crisis.

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malignant hyperthermia, Malignant Hyperthermia Association of the United States, Eagle Pharmaceuticals, Ryanodex

Drug Approved to Treat Rare Disorder Associated with Anesthesia

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Eagle Pharmaceuticals, Inc. today announced the U. S. Food and Drug Administration (FDA) has approved Ryanodex® (dantrolene sodium) for injectable suspension indicated for the treatment of malignant hyperthermia (MH), along with the appropriate supportive measures. MH is an inherited and potentially fatal disorder triggered by certain anesthesia agents in genetically susceptible individuals. FDA had designated Ryanodex as an Orphan Drug in August 2013. Eagle has been informed by the FDA that it will learn over the next four to six weeks if it has been granted the seven year Orphan Drug market exclusivity.

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Malignant Hyperthermia Association of the United States, malignant hyperthermia, Geoffrey Keller Memorial Open Water Swim, Marshall Illinois, LINCOLN TRAIL STATE PARK, United States Masters Swimming, USMS, MHAUS, Geoffrey Keller MH Group, Open Water Swim

Swimmers Take to Water in Support of Rare Disorder

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MARSHALL, Illinois - The Geoffrey Keller Memorial Open Water Swim held in honor of the late son of Curt and Kathleen Keller to raise funds to research better ways of managing Malignant Hyperthermia (MH) during surgery, to improve methods of detecting MH, and for MH awareness.

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MedicAlert Foundation, malignant hyperthermia, Malignant Hyperthermia Association of the United States, ID Tags

MedicAlert Foundation and Rare Disorder Group Provide Free Medical IDs

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MedicAlert Foundation is pleased to announce that individuals living with Malignant Hyperthermia (MH) are now eligible to receive free medical IDs and live 24/7 emergency response services as the result of a grant obtained through the Sandi Ida Glickstein Fund at the Malignant Hyperthermia Association of the United States (MHAUS).

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SAMBA, Society of Ambulatory Anesthesia, MHAUS, Malignant Hyperthermia Association of the United States, malignant hyperthermia

Ambulatory Anesthesia and Rare Disorder Groups Partner to Save Lives

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The Society of Ambulatory Anesthesia (SAMBA) has partnered with the Malignant Hyperthermia Association of the United States (MHAUS) to offer MHAUS membership benefits to active SAMBA members at a reduced rate.

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malignant hyperthermia, Malignant Hyperthermia Association of the United States, MHAUS, Geoffrey Keller, Marshall, IL, Illinois Department of Natural Resources

Open Water Swim in Marshall, Illinois Highlights Rare Disorder

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The Geoffrey Keller Memorial Open Water Swim held in honor of the late son of Curt and Kathy Keller to raise funds to research better ways of managing Malignant Hyperthermia during surgery, to improve methods of detecting MH, and for MH awareness. Presented by Marshall, IL, the Geoff Keller Group of MHAUS, and Illinois Department of Natural Resources.

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malignant hyperthermia, Malignant Hyperthermia Association of the United States, American Association Of Nurse Anesthetists, MHAUS, aana, crna, Certified Registered Nurse Anesthesia

Nurse Anesthetists and Rare Disorder Group Partner to Save Lives

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The American Association of Nurse Anesthetists (AANA) has partnered with the Malignant Hyperthermia Association of the United States (MHAUS) to offer MHAUS membership benefits at a reduced rate to Certified Registered Nurse Anesthetists who are active members of the AANA.

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malignant hyperthermia, Malignant Hyperthermia Association of the United States, Taiwo Aderibigbe, BS, Barbara H. Lang, BS, Henry Rosenberg, MD, Guohua Li, MD, PhD, American Society of Anesthesiologists, Anesthesiology

Experts Say Stocking the Drug Dantrolene Saves Lives and Money

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A substantial number of patients receive care in ambulatory surgical centers. Experts say storing the drug dantrolene at ambulatory surgical centers will save lives and is very cost effective.

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malignant hyperthermia, Malignant Hyperthermia Association of the United States, curecmd, Cure Congenital Muscle Disease, University of Rochester Medical Center, geoff keller

Rare Disorder Groups Ask If You are Affected

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If you are affected by Malignant Hyperthermia, Congenital Muscular Dystrophies or Congenital Myopathy Subtypes, the Malignant Hyperthermia Association of the United States and the Cure Congenital Muscle Disease organization are asking for your help to enable research and clinical trials by registering with the Congenital Muscle Disease International Registry (CMDIR).

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malignant hyperthermia, Malignant Hyperthermia Association of the United States, University of Rochester Medical Center, Geoffrey Keller, Marshall Illinois

March is Malignant Hyperthermia Awareness and Training Month

March to be Malignant Hyperthermia Awareness and Training Month reminds us that a Malignant Hyperthermia crisis is best managed with preparation. Malignant Hyperthermia is often experienced in individuals undergoing, what was expected to be, routine surgery but can also happen to a person outside of the operating room. Malignant Hyperthermia is a genetic disorder found in an estimated 1 out of 2,000 people. Once triggered, the rapid progressive series of chain events include a body temperature of up to 107 degrees, muscle rigidity, system-wide organ failure, and possible death. Introduction of a treatment drug and advances in the understanding of MH have saved many lives since the syndrome was first described in the 1960s.







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