Rare Disease Researcher from #SBP on family challenges & "Mom Power" ahead of @ABCNetwork show debut #SPEECHLESS

Article ID: 661096

Released: 19-Sep-2016 7:05 PM EDT

Source Newsroom: Sanford Burnham Prebys Medical Discovery Institute

Expert Pitch

Newswise — "This is really important to increase awareness of the trials and tribulations rare disease families go through," says Hudson Freeze, Ph.D., director of the Human Genetics program at Sanford Burnham Prebys Medical Discovery Institute in La Jolla, CA, of the new show "Speechless", debuting 9/21 on ABC.

The show stars Minnie Driver as a tough-as-nails Mom, doing everything she can to make sure her son with cerebral palsy has a good life.

Dr. Freeze and the people in his genetics lab at SBP help families answer the questions rare diseases bring.

"Overall, my hope is that we can find enough basic science so we can catalyze the development of therapies and treatments for all these kids," Dr. Freeze says.

"One step at a time we can go out and make a difference. And that's what this show aims to do as well."

To interview Dr. Hudson Freeze, contact Kristen Cusato: kcusato@sbpdiscovery.org

Link to sound bite here: https://www.youtube.com/watch?v=ZJsV7PN96cM


Comment/Share





Chat now!