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Newswise: Autism and epilepsy: Dr. Colin Reilly and Dr. Stéphane Auvin
Released: 16-Nov-2023 9:05 AM EST
Autism and epilepsy: Dr. Colin Reilly and Dr. Stéphane Auvin
International League Against Epilepsy

Compared with the general population, epilepsy is more common in people with autism—and autism is more common in people with epilepsy. How can autism affect the diagnosis and treatment of epilepsy, and vice versa? Joy Mazur spoke to Dr. Colin Reilly and Dr. Stéphane Auvin.

Newswise: Cannabinoids, endocannabinoids, and epilepsy: Dr. Raphael Mechoulam
Released: 16-Nov-2023 9:05 AM EST
Cannabinoids, endocannabinoids, and epilepsy: Dr. Raphael Mechoulam
International League Against Epilepsy

Dr. Raphael Mechoulam was an organic chemist and the father of cannabis research. He passed away in March 2023. This episode is a remastering of a conversation between Dr. Mechoulam and Dr. Meir Bialer, held in 2018 at the 13th European Congress on Epileptology.

Newswise: La epilepsia y el sujetador deportivo: extraños compañeros de cama
Released: 15-Nov-2023 12:05 PM EST
La epilepsia y el sujetador deportivo: extraños compañeros de cama
International League Against Epilepsy

La epilepsia descontrolada de Lisa Lindahl la obligó a ser creativa a la hora de trabajar. En 1977 inventó el sujetador deportivo, que cambió la vida de miles de millones de mujeres y niñas en todo el mundo, y ahora es un mercado global de 40.000 millones de dólares.

Newswise: After epilepsy surgery: Managing expectations and care
Released: 13-Nov-2023 11:05 AM EST
After epilepsy surgery: Managing expectations and care
International League Against Epilepsy

Before surgery, people with epilepsy undergo evaluation, extensive testing, and lots of time with medical teams. But some professionals and advocates argue that after surgery, people are unfairly left to manage treatment and care without much help or guidance.

Newswise: Surmonter les obstacles chirurgicaux dans les zones à faibles ressources
Released: 10-Nov-2023 3:05 PM EST
Surmonter les obstacles chirurgicaux dans les zones à faibles ressources
International League Against Epilepsy

Jusqu'à la moitié des personnes atteintes d'épilepsie résistante aux médicaments (EFR) peuvent bénéficier d'une intervention chirurgicale. Cependant, dans de nombreuses régions à faibles ressources, la mise en place d'un programme chirurgical nécessite de faire face à de multiples défis, notamment la stigmatisation, le manque de ressources, une formation inadéquate et un financement insuffisant.

Newswise: Epilepsy and the sports bra: Strange bedfellows
Released: 8-Nov-2023 11:05 AM EST
Epilepsy and the sports bra: Strange bedfellows
International League Against Epilepsy

Lisa Lindahl’s uncontrolled epilepsy forced her to get creative when it came to employment. In 1977 she invented the sports bra, which changed the lives of billions of women and girls around the world and is now a multi-billion-dollar global market.

Newswise: Attorney turned author pens an epilepsy-focused novel: Sara Staggs
Released: 3-Nov-2023 7:30 AM EDT
Attorney turned author pens an epilepsy-focused novel: Sara Staggs
International League Against Epilepsy

Sara Staggs was a civil rights attorney when her doctors told her to stop practicing law: her seizures had become too frequent. Staggs' new novel, "Uncontrollable," fictionalizes her experience and explores the impact of epilepsy.

Newswise: Overcoming epilepsy surgery barriers in low-resource areas
Released: 3-Nov-2023 7:05 AM EDT
Overcoming epilepsy surgery barriers in low-resource areas
International League Against Epilepsy

Up to half of people with drug-resistant epilepsy can benefit from surgery, but fewer than one in four low- and middle-income countries can offer surgery as a treatment. Challenges include limited resources and education, and stigma.

Newswise: Dravet syndrome and the influence of the genome: Dr. Sanjay Sisodiya
Released: 1-Nov-2023 11:05 AM EDT
Dravet syndrome and the influence of the genome: Dr. Sanjay Sisodiya
International League Against Epilepsy

Dravet syndrome is a rare, severe epilepsy caused by certain changes in the SCN1A gene. But people with Dravet have a wide range of clinical characteristics that cannot be fully explained by these changes. What else is going on?

Newswise: Du temps, de l'éducation et de la persévérance pour combler le retard en matière de traitement de l’épilepsie : l’histoire de la Chine
Released: 31-Oct-2023 10:05 AM EDT
Du temps, de l'éducation et de la persévérance pour combler le retard en matière de traitement de l’épilepsie : l’histoire de la Chine
International League Against Epilepsy

Le Plan d’action mondial intersectoriel sur l'épilepsie et les autres troubles neurologiques vise à réduire les écarts diagnostiques et de thérapeutiques de l'épilepsie dans le monde d'ici 2031. Mais dans la pratique, comment améliorer la prise en charge ?

Newswise: Rapprocher les soins pour l’épilepsie du domicile peut améliorer leur efficacité
Released: 31-Oct-2023 10:05 AM EDT
Rapprocher les soins pour l’épilepsie du domicile peut améliorer leur efficacité
International League Against Epilepsy

Réduire la distance géographique entre les soins de l’épilepsie, les médicaments anticonvulsivants et les personnes atteintes d’épilepsie peut améliorer les résultats, selon un essai randomisé en grappes dans le nord de l’Inde.

Newswise: Comment les médecins peuvent-ils encourager les personnes atteintes d’épilepsie à pratiquer une activité physique ?
Released: 16-Oct-2023 8:05 AM EDT
Comment les médecins peuvent-ils encourager les personnes atteintes d’épilepsie à pratiquer une activité physique ?
International League Against Epilepsy

Des études suggèrent que faire de l’exercice améliore la condition physique, l’humeur, la pensée et la mémoire, ainsi que la qualité de vie globale des personnes atteintes d’épilepsie – autant d'avantages qui s’appliquent également aux personnes non épileptiques.

Newswise: Cerebral amyloid angiopathy, seizures, and epilepsy: Dr. Brin Freund
Released: 4-Oct-2023 2:05 PM EDT
Cerebral amyloid angiopathy, seizures, and epilepsy: Dr. Brin Freund
International League Against Epilepsy

Sixty percent of patients with dementia on autopsy studies have cerebral amyloid angiopathy (CAA) pathology. This episode discusses the relationship between CAA and epilepsy through the lens of a recent publication. Dr. Alina Ivaniuk talks with Dr. Brin Freund.

Newswise: Research Recap: Modified Atkins Diet and Health-Related Quality of Life - Dr. Magnhild Kverneland
Released: 19-Sep-2023 12:05 PM EDT
Research Recap: Modified Atkins Diet and Health-Related Quality of Life - Dr. Magnhild Kverneland
International League Against Epilepsy

Diet treatments are often used with the aim of reducing seizure frequency and severity — but they may have other benefits as well. Joy Mazur spoke with Dr. Magnhild Kverneland about the possible effect of dietary treatments on emotional symptoms and their correlation with health-related quality of life.

Newswise: Statins and epilepsy: Dr. Emilio Russo and Dr. Tony Marson
Released: 13-Sep-2023 3:05 PM EDT
Statins and epilepsy: Dr. Emilio Russo and Dr. Tony Marson
International League Against Epilepsy

Some published data suggest that besides their effect on cholesterol, statins also may play a protective role in some neurological disorders, including epilepsy. Dr. Bruna Nucera interviews Dr. Anthony Marson and Dr. Emilio Russo about whether and how to test statins as potential anti-epileptogenic drugs.

Released: 4-Sep-2023 8:40 AM EDT
Largest genetic study of epilepsy to date provides new insights on why epilepsy develops and potential treatments
International League Against Epilepsy

The largest genetic study of its kind, coordinated by the International League Against Epilepsy (ILAE), has discovered specific changes in our DNA that increase the risk of developing epilepsy.

Released: 8-Aug-2023 12:30 PM EDT
35th International Epilepsy Congress presents latest in epilepsy research and professional opportunities
International League Against Epilepsy

The 35th International Epilepsy Congress (IEC) will take place September 2 – 6, 2023, in Dublin, Ireland. Registrants will hear from the best in global epileptology during teaching courses, symposia, and lectures hosted by the ILAE and IBE.

Released: 7-Aug-2023 11:35 AM EDT
Le jeûne pendant le Ramadan peut réduire la fréquence des crises
International League Against Epilepsy

Pour les musulmans épileptiques, le jeûne intermittent n'est pas seulement une pratique religieuse très appréciée, mais une méthode possible pour améliorer le contrôle des crises. Les résultats d'une étude récente pourraient guider les professionnels de l'épilepsie dans leurs conseils aux musulmans qui souhaitent participer au Ramadan.

Newswise: Caring for someone with functional seizures: Shannon Guinard's story
Released: 3-Aug-2023 12:35 PM EDT
Caring for someone with functional seizures: Shannon Guinard's story
International League Against Epilepsy

Functional seizures resemble epileptic seizures but are not prompted by any electrical activity in the brain. People with functional seizures live with stigma, stress, and emotional and financial burden — and so do their care partners. Joy Mazur spoke with Shannon Guinard about the challenges and stigmas that face care partners of people with functional seizures.

Released: 2-Aug-2023 11:50 AM EDT
Cuidados en crisis funcionales: "Aislados, solos, indefensos"
International League Against Epilepsy

Las personas con convulsiones funcionales enfrentan estigma, estrés y cargas emocionales y financieras, al igual que sus cuidadores. Mientras cuidan a sus seres queridos, algunos cuidadores pueden desarrollar altos niveles de depresión y ansiedad.

Released: 31-Jul-2023 2:00 PM EDT
El ayuno durante el Ramadán puede reducir la frecuencia de las crisis epilépticas
International League Against Epilepsy

Para los musulmanes con epilepsia, el ayuno intermitente no solo es una práctica religiosa muy valorada, sino también un posible método para mejorar el control de las convulsiones. Los hallazgos de un estudio reciente pueden guiar a los profesionales de la epilepsia para asesorar a los musulmanes que desean participar en el Ramadán.

Newswise: Circadian rhythms and epilepsy Part II: Dr. Maxime Baud
Released: 27-Jul-2023 12:45 PM EDT
Circadian rhythms and epilepsy Part II: Dr. Maxime Baud
International League Against Epilepsy

What percentage of people with epilepsy have rhythms to their seizures? How do anti-seizure medications affect rhythms? Is it possible to manipulate seizure rhythms? In Part 2 of our two-part series on circadian rhythms, Dr. Laurent Sheybani talks with Dr. Maxime Baud.

Newswise: Circadian rhythms and epilepsy Part I: Dr. Mark Quigg
Released: 21-Jul-2023 2:35 PM EDT
Circadian rhythms and epilepsy Part I: Dr. Mark Quigg
International League Against Epilepsy

Though the cyclic properties of seizures have been known for more than 100 years, much is still unknown. Does everyone with epilepsy have a seizure pattern? In the first of a two-part series on circadian rhythms, Dr. Laurent Sheybani talks with Dr. Mark Quigg.

Newswise: An update on SUDEP and SUDEP counseling: Dr. Suvasini Sharma
Released: 20-Jul-2023 11:05 AM EDT
An update on SUDEP and SUDEP counseling: Dr. Suvasini Sharma
International League Against Epilepsy

Sudden Unexpected Death in Epilepsy (SUDEP) affects about one out of every 1,000 people with epilepsy. Dr. Emma Carter spoke with Dr. Suvasini Sharma about SUDEP, why it's important to inform patients and families about it, and how to manage risk factors.

Released: 18-Jul-2023 2:10 PM EDT
Caregiving in functional seizures: "Isolated, alone, helpless"
International League Against Epilepsy

People with functional seizures face stigma, stress, and emotional and financial burdens — and so do their caregivers. While taking care of loved ones, some caregivers may develop high levels of depression and anxiety.

Released: 18-Jul-2023 2:05 PM EDT
Cerrando la brecha terapéutica de la epilepsia en Bolivia: tres décadas de iniciativas
International League Against Epilepsy

Au cours des trois dernières décennies, les chercheurs ont travaillé pour combler le fossé du traitement de l'épilepsie dans la région du Gran Chaco en Bolivie. Des projets tels que des enquêtes épidémiologiques, des campagnes de sensibilisation et des programmes éducatifs ont réduit l'écart de 40 %.

Newswise: Artificial Intelligence and Epilepsy: Dr. Christian Bosselmann
Released: 17-Jul-2023 1:40 PM EDT
Artificial Intelligence and Epilepsy: Dr. Christian Bosselmann
International League Against Epilepsy

What’s the role of artificial intelligence in epilepsy research and care? Dr. Alina Ivaniuk talks with Dr. Christian Bosselmann about the potential uses and dangers of AI in epilepsy, including ChatGPT and machine learning.

Released: 13-Jul-2023 11:45 AM EDT
Fasting during Ramadan may reduce seizure frequency
International League Against Epilepsy

For Muslims with epilepsy, intermittent fasting is not only a highly valued religious practice but a possible method to improve seizure control. The findings of a recent study may be able to guide epilepsy professionals in advising Muslims who want to participate in Ramadan.

Newswise: Neurocysticercosis and epileptogenesis: Dr. Hector Garcia
Released: 11-Jul-2023 11:55 AM EDT
Neurocysticercosis and epileptogenesis: Dr. Hector Garcia
International League Against Epilepsy

Neurocysticercosis is a leading cause of epilepsy worldwide. Sharp Waves spoke to Dr. Hector Garcia about how to identify epilepsy caused by the infection and the nuances behind the connection.

Released: 10-Jul-2023 3:05 PM EDT
Closing the epilepsy treatment gap in Bolivia: Three decades of initiatives
International League Against Epilepsy

Over the past three decades, researchers have worked to close the epilepsy treatment gap in the Gran Chaco area of Bolivia. Projects include epidemiological surveys, awareness campaigns, and educational programs. Teleconsultations and a smartphone app have been valuable tools.

Released: 7-Jul-2023 6:10 PM EDT
How and why to address medication adherence: Dr. Avani Modi and Dr. Desiree Williford
International League Against Epilepsy

Most people with epilepsy have difficulty always taking their medications as prescribed. How can clinicians and patients talk about the issue and find solutions? Sharp Waves spoke with Dr. Avani Modi and Dr. Desiree Williford.

Newswise: Africa's plans for improving epilepsy care: Action Amos
Released: 3-Jul-2023 11:50 AM EDT
Africa's plans for improving epilepsy care: Action Amos
International League Against Epilepsy

ILAE spoke with Action Amos about plans and strategies for improving epilepsy care across Africa. Leveraged by the Intersectoral Global Action Plan on epilepsy and other neurological disorders (IGAP), four "trendsetter" countries are taking a variety of approaches to engage governments and ensure the participation of people with epilepsy in all of their initiatives.

Released: 27-Jun-2023 2:05 PM EDT
Empoderar a las personas con epilepsia para liderar la lucha contra la estigmatización
International League Against Epilepsy

El estigma afecta todos los aspectos de la atención de la epilepsia, desde el diagnóstico y el tratamiento hasta la legislación y las asignaciones presupuestarias. Un estudio realizado en los Estados Unidos encontró que un tercio de los participantes informaron que el estigma, no las convulsiones en sí, era la parte más difícil de vivir con epilepsia.

Released: 19-Jun-2023 1:05 PM EDT
Diagnóstico en la era digital: un caso para videos caseros
International League Against Epilepsy

El video ha jugado un papel importante en el cuidado de la epilepsia durante décadas. Ahora, las convulsiones capturadas en el video de un teléfono inteligente pueden acelerar el diagnóstico y el tratamiento, particularmente en áreas con pocos o ningún neurólogo.

Released: 19-Jun-2023 1:05 PM EDT
Diagnosis in the digital age: A case for home videos
International League Against Epilepsy

Video has played an important role in epilepsy care for decades. Now, seizures captured on smartphone video can speed diagnosis and treatment, particularly in areas with few or no neurologists.

Released: 19-Jun-2023 12:05 PM EDT
Bringing epilepsy care closer to home may improve outcomes
International League Against Epilepsy

Access to care affects people with epilepsy worldwide. Bringing care closer to home can help—but what about bringing care inside the home?

Newswise: Postpartum morbidity and mortality in women with epilepsy: A 28-year study
Released: 19-Jun-2023 12:05 PM EDT
Postpartum morbidity and mortality in women with epilepsy: A 28-year study
International League Against Epilepsy

A 28-year study found increased risks of preeclampsia, gestational diabetes, ICU admission during hospitalization for delivery, postpartum hospitalization, and an increased risk of mortality compared with pregnant women who did not have epilepsy.

Released: 19-Jun-2023 12:05 PM EDT
Acercar la atención de la epilepsia al hogar puede mejorar los resultados
International League Against Epilepsy

El acceso a la atención afecta a las personas con epilepsia en todo el mundo. Acercar la atención al hogar puede ayudar, pero ¿qué tal llevar la atención a la casa?

Newswise: Managing epilepsy in older adults
Released: 25-May-2023 11:05 AM EDT
Managing epilepsy in older adults
International League Against Epilepsy

What special considerations must physicians make when managing epilepsy in older adults? Who is considered an “older adult,” anyway? Dr. Anca Arbune interviews two authors of a recent critical review by an ILAE task force.

Newswise: Soutenir les personnes atteintes d’épilepsie aves des outils pour réduire la stigmatisation
Released: 22-May-2023 4:15 PM EDT
Soutenir les personnes atteintes d’épilepsie aves des outils pour réduire la stigmatisation
International League Against Epilepsy

La stigmatisation affecte tous les aspects des soins de l’épilepsie, du diagnostic au traitement en passant par la législation et aux allocations budgétaires. Elle affecte la vie des personnes atteintes d’épilepsie lorsqu’elles n’ont pas un accès égal à l’éducation, à l’emploi et aux mêmes droits sociaux.

Newswise: Tiempo, educación, persistencia para reducir la brecha en el tratamiento de la epilepsia: la historia de China
Released: 11-May-2023 1:05 PM EDT
Tiempo, educación, persistencia para reducir la brecha en el tratamiento de la epilepsia: la historia de China
International League Against Epilepsy

El Plan de Acción Mundial Intersectorial sobre Epilepsia y Otros Trastornos Neurológicos (IGAP) tiene como objetivo reducir las brechas de diagnóstico y tratamiento de la epilepsia en todo el mundo para 2031. Muchas personas en la comunidad de la epilepsia se preguntan: "¿Cómo hacemos mejorar el acceso a la atención?"

Newswise: Empowering people with epilepsy to lead the way in reducing stigma
Released: 27-Apr-2023 1:55 PM EDT
Empowering people with epilepsy to lead the way in reducing stigma
International League Against Epilepsy

Stigma affects all aspects of epilepsy care. It affects the lives of people with epilepsy when they are not given equal access to education, employment, and social opportunities. In a US study, one-third of respondents identified stigma—not seizures—as the most difficult part of living with epilepsy.

Newswise: Moving epilepsy care closer to home: Dr. Gagandeep Singh and Dr. Meenakshi Sharma
Released: 27-Apr-2023 1:20 PM EDT
Moving epilepsy care closer to home: Dr. Gagandeep Singh and Dr. Meenakshi Sharma
International League Against Epilepsy

Can bringing epilepsy care to people’s homes improve outcomes? ILAE spoke with two researchers who conducted a randomized trial of home-based care versus clinic-based care in northern India. Those receiving the home-based care, delivered by community health workers, had better outcomes.

Newswise: Comment les soins de santé primaires peuvent-ils aider à combler les lacunes dans le traitement de l’épilepsie? Un voyage à travers l’Andhra Pradesh, Inde
Released: 11-Apr-2023 11:05 AM EDT
Comment les soins de santé primaires peuvent-ils aider à combler les lacunes dans le traitement de l’épilepsie? Un voyage à travers l’Andhra Pradesh, Inde
International League Against Epilepsy

Le rôle des soins de santé primaires dans l’identification, le diagnostic et le traitement des personnes atteintes d’épilepsie est de plus en plus important. Cependant, les attitudes sociétales et la stigmatisation entourant l’épilepsie peuvent constituer des obstacles majeurs à l’amélioration des soins.

Newswise: Tratamiento inadecuado de primera línea para el estado epiléptico: el problema y las soluciones
Released: 3-Apr-2023 12:05 PM EDT
Tratamiento inadecuado de primera línea para el estado epiléptico: el problema y las soluciones
International League Against Epilepsy

A pesar de las directrices, el tratamiento de primera línea para el estado epiléptico a menudo es inadecuado. Los estudios sugieren que hasta dos tercios de los pacientes reciben dosis subclínicas de benzodiazepinas, ya sea antes de llegar a un hospital o durante el tratamiento hospitalario de emergencia. ¿Hay soluciones?

Newswise: Epilepsy care in Ukraine, one year later: Some crises have subsided, but others loom large
Released: 21-Mar-2023 2:15 PM EDT
Epilepsy care in Ukraine, one year later: Some crises have subsided, but others loom large
International League Against Epilepsy

When the full-scale war in Ukraine began, anti-seizure medication supplies disappeared and some families left the country for safety. How has the past year affected people with epilepsy in Ukraine and their families, as well as the physicians who care for them?

Newswise: Time, education, persistence to reduce the epilepsy treatment gap: China’s story
Released: 15-Mar-2023 9:50 AM EDT
Time, education, persistence to reduce the epilepsy treatment gap: China’s story
International League Against Epilepsy

In some countries, more than 90% of people with epilepsy are not receiving treatment. Over the past two decades, epilepsy diagnosis and treatment have evolved in China as the country has focused on multiple aspects of care, including stigma and access to specialists.

Newswise: Shining a light on stigma and discrimination in epilepsy
Released: 10-Mar-2023 9:50 AM EST
Shining a light on stigma and discrimination in epilepsy
International League Against Epilepsy

Stigma leads to discrimination and can affect all aspects of a person’s life. Dr. Bruna Nucera talked with Mary Secco from the International Bureau for Epilepsy (IBE) about addressing stigma through listening to people with epilepsy and their lived experiences.

Newswise: “Living with epilepsy should not be a secret”: Jessie Nyirenda
Released: 7-Mar-2023 8:05 AM EST
“Living with epilepsy should not be a secret”: Jessie Nyirenda
International League Against Epilepsy

Jessie Nyirenda's seizures began in her early teens. She was dismissed as attention-seeking and told she might be cursed. Years later, Jessie discovered information about her condition through library research and was formally diagnosed. She now works as a financial educator and is a mother of three children.

Newswise: Sleep and epilepsy: Dr. Birgit Frauscher
Released: 6-Mar-2023 4:25 PM EST
Sleep and epilepsy: Dr. Birgit Frauscher
International League Against Epilepsy

Bidirectional links between epilepsy and sleep have been known for thousands of years. Despite nearly a century of research using EEG investigations, the relationships are still not well understood.



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