Compared with the general population, epilepsy is more common in people with autism—and autism is more common in people with epilepsy. How can autism affect the diagnosis and treatment of epilepsy, and vice versa? Joy Mazur spoke to Dr. Colin Reilly and Dr. Stéphane Auvin.
Dr. Raphael Mechoulam was an organic chemist and the father of cannabis research. He passed away in March 2023. This episode is a remastering of a conversation between Dr. Mechoulam and Dr. Meir Bialer, held in 2018 at the 13th European Congress on Epileptology.
La epilepsia descontrolada de Lisa Lindahl la obligó a ser creativa a la hora de trabajar. En 1977 inventó el sujetador deportivo, que cambió la vida de miles de millones de mujeres y niñas en todo el mundo, y ahora es un mercado global de 40.000 millones de dólares.
Before surgery, people with epilepsy undergo evaluation, extensive testing, and lots of time with medical teams. But some professionals and advocates argue that after surgery, people are unfairly left to manage treatment and care without much help or guidance.
Jusqu'à la moitié des personnes atteintes d'épilepsie résistante aux médicaments (EFR) peuvent bénéficier d'une intervention chirurgicale. Cependant, dans de nombreuses régions à faibles ressources, la mise en place d'un programme chirurgical nécessite de faire face à de multiples défis, notamment la stigmatisation, le manque de ressources, une formation inadéquate et un financement insuffisant.
Lisa Lindahl’s uncontrolled epilepsy forced her to get creative when it came to employment. In 1977 she invented the sports bra, which changed the lives of billions of women and girls around the world and is now a multi-billion-dollar global market.
Sara Staggs was a civil rights attorney when her doctors told her to stop practicing law: her seizures had become too frequent. Staggs' new novel, "Uncontrollable," fictionalizes her experience and explores the impact of epilepsy.
Up to half of people with drug-resistant epilepsy can benefit from surgery, but fewer than one in four low- and middle-income countries can offer surgery as a treatment. Challenges include limited resources and education, and stigma.
Dravet syndrome is a rare, severe epilepsy caused by certain changes in the SCN1A gene. But people with Dravet have a wide range of clinical characteristics that cannot be fully explained by these changes. What else is going on?
Le Plan d’action mondial intersectoriel sur l'épilepsie et les autres troubles neurologiques vise à réduire les écarts diagnostiques et de thérapeutiques de l'épilepsie dans le monde d'ici 2031. Mais dans la pratique, comment améliorer la prise en charge ?
Réduire la distance géographique entre les soins de l’épilepsie, les médicaments anticonvulsivants et les personnes atteintes d’épilepsie peut améliorer les résultats, selon un essai randomisé en grappes dans le nord de l’Inde.
Des études suggèrent que faire de l’exercice améliore la condition physique, l’humeur, la pensée et la mémoire, ainsi que la qualité de vie globale des personnes atteintes d’épilepsie – autant d'avantages qui s’appliquent également aux personnes non épileptiques.
Sixty percent of patients with dementia on autopsy studies have cerebral amyloid angiopathy (CAA) pathology. This episode discusses the relationship between CAA and epilepsy through the lens of a recent publication. Dr. Alina Ivaniuk talks with Dr. Brin Freund.
Diet treatments are often used with the aim of reducing seizure frequency and severity — but they may have other benefits as well. Joy Mazur spoke with Dr. Magnhild Kverneland about the possible effect of dietary treatments on emotional symptoms and their correlation with health-related quality of life.
Some published data suggest that besides their effect on cholesterol, statins also may play a protective role in some neurological disorders, including epilepsy. Dr. Bruna Nucera interviews Dr. Anthony Marson and Dr. Emilio Russo about whether and how to test statins as potential anti-epileptogenic drugs.
The largest genetic study of its kind, coordinated by the International League Against Epilepsy (ILAE), has discovered specific changes in our DNA that increase the risk of developing epilepsy.
The 35th International Epilepsy Congress (IEC) will take place September 2 – 6, 2023, in Dublin, Ireland. Registrants will hear from the best in global epileptology during teaching courses, symposia, and lectures hosted by the ILAE and IBE.
Pour les musulmans épileptiques, le jeûne intermittent n'est pas seulement une pratique religieuse très appréciée, mais une méthode possible pour améliorer le contrôle des crises. Les résultats d'une étude récente pourraient guider les professionnels de l'épilepsie dans leurs conseils aux musulmans qui souhaitent participer au Ramadan.
Functional seizures resemble epileptic seizures but are not prompted by any electrical activity in the brain. People with functional seizures live with stigma, stress, and emotional and financial burden — and so do their care partners. Joy Mazur spoke with Shannon Guinard about the challenges and stigmas that face care partners of people with functional seizures.
Las personas con convulsiones funcionales enfrentan estigma, estrés y cargas emocionales y financieras, al igual que sus cuidadores. Mientras cuidan a sus seres queridos, algunos cuidadores pueden desarrollar altos niveles de depresión y ansiedad.
Para los musulmanes con epilepsia, el ayuno intermitente no solo es una práctica religiosa muy valorada, sino también un posible método para mejorar el control de las convulsiones. Los hallazgos de un estudio reciente pueden guiar a los profesionales de la epilepsia para asesorar a los musulmanes que desean participar en el Ramadán.
What percentage of people with epilepsy have rhythms to their seizures? How do anti-seizure medications affect rhythms? Is it possible to manipulate seizure rhythms? In Part 2 of our two-part series on circadian rhythms, Dr. Laurent Sheybani talks with Dr. Maxime Baud.
Though the cyclic properties of seizures have been known for more than 100 years, much is still unknown. Does everyone with epilepsy have a seizure pattern? In the first of a two-part series on circadian rhythms, Dr. Laurent Sheybani talks with Dr. Mark Quigg.
Sudden Unexpected Death in Epilepsy (SUDEP) affects about one out of every 1,000 people with epilepsy. Dr. Emma Carter spoke with Dr. Suvasini Sharma about SUDEP, why it's important to inform patients and families about it, and how to manage risk factors.
People with functional seizures face stigma, stress, and emotional and financial burdens — and so do their caregivers. While taking care of loved ones, some caregivers may develop high levels of depression and anxiety.
Au cours des trois dernières décennies, les chercheurs ont travaillé pour combler le fossé du traitement de l'épilepsie dans la région du Gran Chaco en Bolivie. Des projets tels que des enquêtes épidémiologiques, des campagnes de sensibilisation et des programmes éducatifs ont réduit l'écart de 40 %.
What’s the role of artificial intelligence in epilepsy research and care? Dr. Alina Ivaniuk talks with Dr. Christian Bosselmann about the potential uses and dangers of AI in epilepsy, including ChatGPT and machine learning.
For Muslims with epilepsy, intermittent fasting is not only a highly valued religious practice but a possible method to improve seizure control. The findings of a recent study may be able to guide epilepsy professionals in advising Muslims who want to participate in Ramadan.
Neurocysticercosis is a leading cause of epilepsy worldwide. Sharp Waves spoke to Dr. Hector Garcia about how to identify epilepsy caused by the infection and the nuances behind the connection.
Over the past three decades, researchers have worked to close the epilepsy treatment gap in the Gran Chaco area of Bolivia. Projects include epidemiological surveys, awareness campaigns, and educational programs. Teleconsultations and a smartphone app have been valuable tools.
Most people with epilepsy have difficulty always taking their medications as prescribed. How can clinicians and patients talk about the issue and find solutions? Sharp Waves spoke with Dr. Avani Modi and Dr. Desiree Williford.
ILAE spoke with Action Amos about plans and strategies for improving epilepsy care across Africa. Leveraged by the Intersectoral Global Action Plan on epilepsy and other neurological disorders (IGAP), four "trendsetter" countries are taking a variety of approaches to engage governments and ensure the participation of people with epilepsy in all of their initiatives.
El estigma afecta todos los aspectos de la atención de la epilepsia, desde el diagnóstico y el tratamiento hasta la legislación y las asignaciones presupuestarias. Un estudio realizado en los Estados Unidos encontró que un tercio de los participantes informaron que el estigma, no las convulsiones en sí, era la parte más difícil de vivir con epilepsia.
El video ha jugado un papel importante en el cuidado de la epilepsia durante décadas. Ahora, las convulsiones capturadas en el video de un teléfono inteligente pueden acelerar el diagnóstico y el tratamiento, particularmente en áreas con pocos o ningún neurólogo.
Video has played an important role in epilepsy care for decades. Now, seizures captured on smartphone video can speed diagnosis and treatment, particularly in areas with few or no neurologists.
Access to care affects people with epilepsy worldwide. Bringing care closer to home can help—but what about bringing care inside the home?
A 28-year study found increased risks of preeclampsia, gestational diabetes, ICU admission during hospitalization for delivery, postpartum hospitalization, and an increased risk of mortality compared with pregnant women who did not have epilepsy.
El acceso a la atención afecta a las personas con epilepsia en todo el mundo. Acercar la atención al hogar puede ayudar, pero ¿qué tal llevar la atención a la casa?
What special considerations must physicians make when managing epilepsy in older adults? Who is considered an “older adult,” anyway? Dr. Anca Arbune interviews two authors of a recent critical review by an ILAE task force.
La stigmatisation affecte tous les aspects des soins de l’épilepsie, du diagnostic au traitement en passant par la législation et aux allocations budgétaires. Elle affecte la vie des personnes atteintes d’épilepsie lorsqu’elles n’ont pas un accès égal à l’éducation, à l’emploi et aux mêmes droits sociaux.
El Plan de Acción Mundial Intersectorial sobre Epilepsia y Otros Trastornos Neurológicos (IGAP) tiene como objetivo reducir las brechas de diagnóstico y tratamiento de la epilepsia en todo el mundo para 2031. Muchas personas en la comunidad de la epilepsia se preguntan: "¿Cómo hacemos mejorar el acceso a la atención?"
Stigma affects all aspects of epilepsy care. It affects the lives of people with epilepsy when they are not given equal access to education, employment, and social opportunities. In a US study, one-third of respondents identified stigma—not seizures—as the most difficult part of living with epilepsy.
Can bringing epilepsy care to people’s homes improve outcomes? ILAE spoke with two researchers who conducted a randomized trial of home-based care versus clinic-based care in northern India. Those receiving the home-based care, delivered by community health workers, had better outcomes.
Le rôle des soins de santé primaires dans l’identification, le diagnostic et le traitement des personnes atteintes d’épilepsie est de plus en plus important. Cependant, les attitudes sociétales et la stigmatisation entourant l’épilepsie peuvent constituer des obstacles majeurs à l’amélioration des soins.
A pesar de las directrices, el tratamiento de primera línea para el estado epiléptico a menudo es inadecuado. Los estudios sugieren que hasta dos tercios de los pacientes reciben dosis subclínicas de benzodiazepinas, ya sea antes de llegar a un hospital o durante el tratamiento hospitalario de emergencia. ¿Hay soluciones?
When the full-scale war in Ukraine began, anti-seizure medication supplies disappeared and some families left the country for safety. How has the past year affected people with epilepsy in Ukraine and their families, as well as the physicians who care for them?
In some countries, more than 90% of people with epilepsy are not receiving treatment. Over the past two decades, epilepsy diagnosis and treatment have evolved in China as the country has focused on multiple aspects of care, including stigma and access to specialists.
Stigma leads to discrimination and can affect all aspects of a person’s life. Dr. Bruna Nucera talked with Mary Secco from the International Bureau for Epilepsy (IBE) about addressing stigma through listening to people with epilepsy and their lived experiences.
Jessie Nyirenda's seizures began in her early teens. She was dismissed as attention-seeking and told she might be cursed. Years later, Jessie discovered information about her condition through library research and was formally diagnosed. She now works as a financial educator and is a mother of three children.
Bidirectional links between epilepsy and sleep have been known for thousands of years. Despite nearly a century of research using EEG investigations, the relationships are still not well understood.
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