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Newswise: Behind the Wheel: Navigating Driving with Epilepsy
Released: 1-Mar-2024 1:05 PM EST
Behind the Wheel: Navigating Driving with Epilepsy
International League Against Epilepsy

For people with epilepsy, the inability to drive is often accompanied by frustration, loss of freedom, and increased dependence on others. Some countries ban people from driving for life, while others allow it after a specific amount of time passes without seizures.

Newswise: Behind the wheel: Navigating driving with epilepsy
Released: 19-Feb-2024 9:15 AM EST
Behind the wheel: Navigating driving with epilepsy
International League Against Epilepsy

For people with epilepsy, driving is a top concern. The inability to drive often comes with frustration, a loss of freedom, and dependency on others. Regulations vary; some countries ban people with epilepsy from driving for life, while most require a specific seizure-free period.

Newswise:
Released: 15-Feb-2024 2:05 PM EST
"Talking about things that no one else will talk about": Torie Robinson, host of Epilepsy Sparks Insights
International League Against Epilepsy

Diagnosed with epilepsy at age 10, Torie Robinson uses her podcast to share knowledge with people with epilepsy, their families, and the public. Her episode topics range from the biochemistry of epilepsy to gastrointestinal issues and much, much more.

Newswise: Mejora del proceso de evaluación de la cirugía de la epilepsia: formación y comunicación
Released: 7-Feb-2024 10:05 AM EST
Mejora del proceso de evaluación de la cirugía de la epilepsia: formación y comunicación
International League Against Epilepsy

Aunque la cirugía puede ser una opción para hasta el 40% de las personas con epilepsia resistente a los medicamentos, menos del 1% son remitidos a centros de epilepsia cada año. ¿Por qué?

Newswise: Improving the epilepsy surgery evaluation pipeline: Training and communication
Released: 7-Feb-2024 10:05 AM EST
Improving the epilepsy surgery evaluation pipeline: Training and communication
International League Against Epilepsy

Surgery may be an option for up to 40% of people with drug-resistant epilepsy, but fewer than 1% are referred to epilepsy centers each year. Why?

Newswise: Book review: The Idea of Epilepsy by Simon Shorvon
Released: 5-Feb-2024 2:05 PM EST
Book review: The Idea of Epilepsy by Simon Shorvon
International League Against Epilepsy

In a detailed, comprehensive, and scholarly fashion, the writer takes us on a journey, using the metaphor of “The Voyage of the Good Ship Epilepsy." As a near footnote, the author suggests in the end that the term "epilepsy" should be abolished altogether.

Newswise: Cambiando las reglas del juego: la inventora de un sujetador deportivo lideró el impulso para desarrollar más investigación sobre la epilepsia en las mujeres
Released: 25-Jan-2024 9:05 AM EST
Cambiando las reglas del juego: la inventora de un sujetador deportivo lideró el impulso para desarrollar más investigación sobre la epilepsia en las mujeres
International League Against Epilepsy

Después de inventar el primer sostén deportivo comercial en la década de 1970, Lisa Lindahl aprovechó su perspectiva única como líder empresarial con epilepsia para aumentar la financiación de la investigación y la concienciación sobre los problemas relacionados con la epilepsia en las mujeres.

Newswise: A conversation about The Idea of Epilepsy: Dr. Phillip Pearl and Dr. Simon Shorvon
Released: 18-Jan-2024 2:05 PM EST
A conversation about The Idea of Epilepsy: Dr. Phillip Pearl and Dr. Simon Shorvon
International League Against Epilepsy

Published in 2023, Dr. Simon Shorvon’s The Idea of Epilepsy covers the history of epilepsy from multiple perspectives over the past 160 years. It ends with a tantalizing question: Does epilepsy actually exist? Harvard's Dr. Phillip Pearl interviews Dr. Shorvon.

Newswise: Después de la cirugía de epilepsia: manejo de las expectativas y del cuidado
Released: 18-Jan-2024 12:05 PM EST
Después de la cirugía de epilepsia: manejo de las expectativas y del cuidado
International League Against Epilepsy

Antes de la cirugía, las personas con epilepsia se someten a un proceso exhaustivo que implica una evaluación prolongada, pruebas detalladas y mucho tiempo con los equipos médicos. Pero después de la cirugía, argumentan algunos profesionales y defensores, se dejan las personas injustamente a cargo del tratamiento y del cuidado sin mucha ayuda u orientación.

Newswise: First seizure from sleep and risk of recurrence: Dr. Elaine Pang
Released: 15-Dec-2023 10:05 AM EST
First seizure from sleep and risk of recurrence: Dr. Elaine Pang
International League Against Epilepsy

People who have their first seizure during sleep are at greater risk for future seizures, compared with people who have their first seizure when awake.

Newswise: Changing the game: Sports bra inventor led charge for more research on epilepsy in women
Released: 12-Dec-2023 9:30 AM EST
Changing the game: Sports bra inventor led charge for more research on epilepsy in women
International League Against Epilepsy

After inventing the first commercial sports bra in the 1970s, Lisa Lindahl leveraged her unique perspective as a business leader and woman with epilepsy to advocate for more research and awareness of epilepsy-related issues in women.

Newswise: Autism and epilepsy: Dr. Colin Reilly and Dr. Stéphane Auvin
Released: 16-Nov-2023 9:05 AM EST
Autism and epilepsy: Dr. Colin Reilly and Dr. Stéphane Auvin
International League Against Epilepsy

Compared with the general population, epilepsy is more common in people with autism—and autism is more common in people with epilepsy. How can autism affect the diagnosis and treatment of epilepsy, and vice versa? Joy Mazur spoke to Dr. Colin Reilly and Dr. Stéphane Auvin.

Newswise: Cannabinoids, endocannabinoids, and epilepsy: Dr. Raphael Mechoulam
Released: 16-Nov-2023 9:05 AM EST
Cannabinoids, endocannabinoids, and epilepsy: Dr. Raphael Mechoulam
International League Against Epilepsy

Dr. Raphael Mechoulam was an organic chemist and the father of cannabis research. He passed away in March 2023. This episode is a remastering of a conversation between Dr. Mechoulam and Dr. Meir Bialer, held in 2018 at the 13th European Congress on Epileptology.

Newswise: La epilepsia y el sujetador deportivo: extraños compañeros de cama
Released: 15-Nov-2023 12:05 PM EST
La epilepsia y el sujetador deportivo: extraños compañeros de cama
International League Against Epilepsy

La epilepsia descontrolada de Lisa Lindahl la obligó a ser creativa a la hora de trabajar. En 1977 inventó el sujetador deportivo, que cambió la vida de miles de millones de mujeres y niñas en todo el mundo, y ahora es un mercado global de 40.000 millones de dólares.

Newswise: After epilepsy surgery: Managing expectations and care
Released: 13-Nov-2023 11:05 AM EST
After epilepsy surgery: Managing expectations and care
International League Against Epilepsy

Before surgery, people with epilepsy undergo evaluation, extensive testing, and lots of time with medical teams. But some professionals and advocates argue that after surgery, people are unfairly left to manage treatment and care without much help or guidance.

Newswise: Surmonter les obstacles chirurgicaux dans les zones à faibles ressources
Released: 10-Nov-2023 3:05 PM EST
Surmonter les obstacles chirurgicaux dans les zones à faibles ressources
International League Against Epilepsy

Jusqu'à la moitié des personnes atteintes d'épilepsie résistante aux médicaments (EFR) peuvent bénéficier d'une intervention chirurgicale. Cependant, dans de nombreuses régions à faibles ressources, la mise en place d'un programme chirurgical nécessite de faire face à de multiples défis, notamment la stigmatisation, le manque de ressources, une formation inadéquate et un financement insuffisant.

Newswise: Epilepsy and the sports bra: Strange bedfellows
Released: 8-Nov-2023 11:05 AM EST
Epilepsy and the sports bra: Strange bedfellows
International League Against Epilepsy

Lisa Lindahl’s uncontrolled epilepsy forced her to get creative when it came to employment. In 1977 she invented the sports bra, which changed the lives of billions of women and girls around the world and is now a multi-billion-dollar global market.

Newswise: Attorney turned author pens an epilepsy-focused novel: Sara Staggs
Released: 3-Nov-2023 7:30 AM EDT
Attorney turned author pens an epilepsy-focused novel: Sara Staggs
International League Against Epilepsy

Sara Staggs was a civil rights attorney when her doctors told her to stop practicing law: her seizures had become too frequent. Staggs' new novel, "Uncontrollable," fictionalizes her experience and explores the impact of epilepsy.

Newswise: Overcoming epilepsy surgery barriers in low-resource areas
Released: 3-Nov-2023 7:05 AM EDT
Overcoming epilepsy surgery barriers in low-resource areas
International League Against Epilepsy

Up to half of people with drug-resistant epilepsy can benefit from surgery, but fewer than one in four low- and middle-income countries can offer surgery as a treatment. Challenges include limited resources and education, and stigma.

Newswise: Dravet syndrome and the influence of the genome: Dr. Sanjay Sisodiya
Released: 1-Nov-2023 11:05 AM EDT
Dravet syndrome and the influence of the genome: Dr. Sanjay Sisodiya
International League Against Epilepsy

Dravet syndrome is a rare, severe epilepsy caused by certain changes in the SCN1A gene. But people with Dravet have a wide range of clinical characteristics that cannot be fully explained by these changes. What else is going on?

Newswise: Du temps, de l'éducation et de la persévérance pour combler le retard en matière de traitement de l’épilepsie : l’histoire de la Chine
Released: 31-Oct-2023 10:05 AM EDT
Du temps, de l'éducation et de la persévérance pour combler le retard en matière de traitement de l’épilepsie : l’histoire de la Chine
International League Against Epilepsy

Le Plan d’action mondial intersectoriel sur l'épilepsie et les autres troubles neurologiques vise à réduire les écarts diagnostiques et de thérapeutiques de l'épilepsie dans le monde d'ici 2031. Mais dans la pratique, comment améliorer la prise en charge ?

Newswise: Rapprocher les soins pour l’épilepsie du domicile peut améliorer leur efficacité
Released: 31-Oct-2023 10:05 AM EDT
Rapprocher les soins pour l’épilepsie du domicile peut améliorer leur efficacité
International League Against Epilepsy

Réduire la distance géographique entre les soins de l’épilepsie, les médicaments anticonvulsivants et les personnes atteintes d’épilepsie peut améliorer les résultats, selon un essai randomisé en grappes dans le nord de l’Inde.

Newswise: Comment les médecins peuvent-ils encourager les personnes atteintes d’épilepsie à pratiquer une activité physique ?
Released: 16-Oct-2023 8:05 AM EDT
Comment les médecins peuvent-ils encourager les personnes atteintes d’épilepsie à pratiquer une activité physique ?
International League Against Epilepsy

Des études suggèrent que faire de l’exercice améliore la condition physique, l’humeur, la pensée et la mémoire, ainsi que la qualité de vie globale des personnes atteintes d’épilepsie – autant d'avantages qui s’appliquent également aux personnes non épileptiques.

Newswise: Cerebral amyloid angiopathy, seizures, and epilepsy: Dr. Brin Freund
Released: 4-Oct-2023 2:05 PM EDT
Cerebral amyloid angiopathy, seizures, and epilepsy: Dr. Brin Freund
International League Against Epilepsy

Sixty percent of patients with dementia on autopsy studies have cerebral amyloid angiopathy (CAA) pathology. This episode discusses the relationship between CAA and epilepsy through the lens of a recent publication. Dr. Alina Ivaniuk talks with Dr. Brin Freund.

Newswise: Research Recap: Modified Atkins Diet and Health-Related Quality of Life - Dr. Magnhild Kverneland
Released: 19-Sep-2023 12:05 PM EDT
Research Recap: Modified Atkins Diet and Health-Related Quality of Life - Dr. Magnhild Kverneland
International League Against Epilepsy

Diet treatments are often used with the aim of reducing seizure frequency and severity — but they may have other benefits as well. Joy Mazur spoke with Dr. Magnhild Kverneland about the possible effect of dietary treatments on emotional symptoms and their correlation with health-related quality of life.

Newswise: Statins and epilepsy: Dr. Emilio Russo and Dr. Tony Marson
Released: 13-Sep-2023 3:05 PM EDT
Statins and epilepsy: Dr. Emilio Russo and Dr. Tony Marson
International League Against Epilepsy

Some published data suggest that besides their effect on cholesterol, statins also may play a protective role in some neurological disorders, including epilepsy. Dr. Bruna Nucera interviews Dr. Anthony Marson and Dr. Emilio Russo about whether and how to test statins as potential anti-epileptogenic drugs.

Released: 4-Sep-2023 8:40 AM EDT
Largest genetic study of epilepsy to date provides new insights on why epilepsy develops and potential treatments
International League Against Epilepsy

The largest genetic study of its kind, coordinated by the International League Against Epilepsy (ILAE), has discovered specific changes in our DNA that increase the risk of developing epilepsy.

Released: 8-Aug-2023 12:30 PM EDT
35th International Epilepsy Congress presents latest in epilepsy research and professional opportunities
International League Against Epilepsy

The 35th International Epilepsy Congress (IEC) will take place September 2 – 6, 2023, in Dublin, Ireland. Registrants will hear from the best in global epileptology during teaching courses, symposia, and lectures hosted by the ILAE and IBE.

Released: 7-Aug-2023 11:35 AM EDT
Le jeûne pendant le Ramadan peut réduire la fréquence des crises
International League Against Epilepsy

Pour les musulmans épileptiques, le jeûne intermittent n'est pas seulement une pratique religieuse très appréciée, mais une méthode possible pour améliorer le contrôle des crises. Les résultats d'une étude récente pourraient guider les professionnels de l'épilepsie dans leurs conseils aux musulmans qui souhaitent participer au Ramadan.

Newswise: Caring for someone with functional seizures: Shannon Guinard's story
Released: 3-Aug-2023 12:35 PM EDT
Caring for someone with functional seizures: Shannon Guinard's story
International League Against Epilepsy

Functional seizures resemble epileptic seizures but are not prompted by any electrical activity in the brain. People with functional seizures live with stigma, stress, and emotional and financial burden — and so do their care partners. Joy Mazur spoke with Shannon Guinard about the challenges and stigmas that face care partners of people with functional seizures.

Released: 2-Aug-2023 11:50 AM EDT
Cuidados en crisis funcionales: "Aislados, solos, indefensos"
International League Against Epilepsy

Las personas con convulsiones funcionales enfrentan estigma, estrés y cargas emocionales y financieras, al igual que sus cuidadores. Mientras cuidan a sus seres queridos, algunos cuidadores pueden desarrollar altos niveles de depresión y ansiedad.

Released: 31-Jul-2023 2:00 PM EDT
El ayuno durante el Ramadán puede reducir la frecuencia de las crisis epilépticas
International League Against Epilepsy

Para los musulmanes con epilepsia, el ayuno intermitente no solo es una práctica religiosa muy valorada, sino también un posible método para mejorar el control de las convulsiones. Los hallazgos de un estudio reciente pueden guiar a los profesionales de la epilepsia para asesorar a los musulmanes que desean participar en el Ramadán.

Newswise: Circadian rhythms and epilepsy Part II: Dr. Maxime Baud
Released: 27-Jul-2023 12:45 PM EDT
Circadian rhythms and epilepsy Part II: Dr. Maxime Baud
International League Against Epilepsy

What percentage of people with epilepsy have rhythms to their seizures? How do anti-seizure medications affect rhythms? Is it possible to manipulate seizure rhythms? In Part 2 of our two-part series on circadian rhythms, Dr. Laurent Sheybani talks with Dr. Maxime Baud.

Newswise: Circadian rhythms and epilepsy Part I: Dr. Mark Quigg
Released: 21-Jul-2023 2:35 PM EDT
Circadian rhythms and epilepsy Part I: Dr. Mark Quigg
International League Against Epilepsy

Though the cyclic properties of seizures have been known for more than 100 years, much is still unknown. Does everyone with epilepsy have a seizure pattern? In the first of a two-part series on circadian rhythms, Dr. Laurent Sheybani talks with Dr. Mark Quigg.

Newswise: An update on SUDEP and SUDEP counseling: Dr. Suvasini Sharma
Released: 20-Jul-2023 11:05 AM EDT
An update on SUDEP and SUDEP counseling: Dr. Suvasini Sharma
International League Against Epilepsy

Sudden Unexpected Death in Epilepsy (SUDEP) affects about one out of every 1,000 people with epilepsy. Dr. Emma Carter spoke with Dr. Suvasini Sharma about SUDEP, why it's important to inform patients and families about it, and how to manage risk factors.

Released: 18-Jul-2023 2:10 PM EDT
Caregiving in functional seizures: "Isolated, alone, helpless"
International League Against Epilepsy

People with functional seizures face stigma, stress, and emotional and financial burdens — and so do their caregivers. While taking care of loved ones, some caregivers may develop high levels of depression and anxiety.

Released: 18-Jul-2023 2:05 PM EDT
Cerrando la brecha terapéutica de la epilepsia en Bolivia: tres décadas de iniciativas
International League Against Epilepsy

Au cours des trois dernières décennies, les chercheurs ont travaillé pour combler le fossé du traitement de l'épilepsie dans la région du Gran Chaco en Bolivie. Des projets tels que des enquêtes épidémiologiques, des campagnes de sensibilisation et des programmes éducatifs ont réduit l'écart de 40 %.

Newswise: Artificial Intelligence and Epilepsy: Dr. Christian Bosselmann
Released: 17-Jul-2023 1:40 PM EDT
Artificial Intelligence and Epilepsy: Dr. Christian Bosselmann
International League Against Epilepsy

What’s the role of artificial intelligence in epilepsy research and care? Dr. Alina Ivaniuk talks with Dr. Christian Bosselmann about the potential uses and dangers of AI in epilepsy, including ChatGPT and machine learning.

Released: 13-Jul-2023 11:45 AM EDT
Fasting during Ramadan may reduce seizure frequency
International League Against Epilepsy

For Muslims with epilepsy, intermittent fasting is not only a highly valued religious practice but a possible method to improve seizure control. The findings of a recent study may be able to guide epilepsy professionals in advising Muslims who want to participate in Ramadan.

Newswise: Neurocysticercosis and epileptogenesis: Dr. Hector Garcia
Released: 11-Jul-2023 11:55 AM EDT
Neurocysticercosis and epileptogenesis: Dr. Hector Garcia
International League Against Epilepsy

Neurocysticercosis is a leading cause of epilepsy worldwide. Sharp Waves spoke to Dr. Hector Garcia about how to identify epilepsy caused by the infection and the nuances behind the connection.

Released: 10-Jul-2023 3:05 PM EDT
Closing the epilepsy treatment gap in Bolivia: Three decades of initiatives
International League Against Epilepsy

Over the past three decades, researchers have worked to close the epilepsy treatment gap in the Gran Chaco area of Bolivia. Projects include epidemiological surveys, awareness campaigns, and educational programs. Teleconsultations and a smartphone app have been valuable tools.

Released: 7-Jul-2023 6:10 PM EDT
How and why to address medication adherence: Dr. Avani Modi and Dr. Desiree Williford
International League Against Epilepsy

Most people with epilepsy have difficulty always taking their medications as prescribed. How can clinicians and patients talk about the issue and find solutions? Sharp Waves spoke with Dr. Avani Modi and Dr. Desiree Williford.

Newswise: Africa's plans for improving epilepsy care: Action Amos
Released: 3-Jul-2023 11:50 AM EDT
Africa's plans for improving epilepsy care: Action Amos
International League Against Epilepsy

ILAE spoke with Action Amos about plans and strategies for improving epilepsy care across Africa. Leveraged by the Intersectoral Global Action Plan on epilepsy and other neurological disorders (IGAP), four "trendsetter" countries are taking a variety of approaches to engage governments and ensure the participation of people with epilepsy in all of their initiatives.

Released: 27-Jun-2023 2:05 PM EDT
Empoderar a las personas con epilepsia para liderar la lucha contra la estigmatización
International League Against Epilepsy

El estigma afecta todos los aspectos de la atención de la epilepsia, desde el diagnóstico y el tratamiento hasta la legislación y las asignaciones presupuestarias. Un estudio realizado en los Estados Unidos encontró que un tercio de los participantes informaron que el estigma, no las convulsiones en sí, era la parte más difícil de vivir con epilepsia.

Released: 19-Jun-2023 1:05 PM EDT
Diagnóstico en la era digital: un caso para videos caseros
International League Against Epilepsy

El video ha jugado un papel importante en el cuidado de la epilepsia durante décadas. Ahora, las convulsiones capturadas en el video de un teléfono inteligente pueden acelerar el diagnóstico y el tratamiento, particularmente en áreas con pocos o ningún neurólogo.

Released: 19-Jun-2023 1:05 PM EDT
Diagnosis in the digital age: A case for home videos
International League Against Epilepsy

Video has played an important role in epilepsy care for decades. Now, seizures captured on smartphone video can speed diagnosis and treatment, particularly in areas with few or no neurologists.

Released: 19-Jun-2023 12:05 PM EDT
Bringing epilepsy care closer to home may improve outcomes
International League Against Epilepsy

Access to care affects people with epilepsy worldwide. Bringing care closer to home can help—but what about bringing care inside the home?

Newswise: Postpartum morbidity and mortality in women with epilepsy: A 28-year study
Released: 19-Jun-2023 12:05 PM EDT
Postpartum morbidity and mortality in women with epilepsy: A 28-year study
International League Against Epilepsy

A 28-year study found increased risks of preeclampsia, gestational diabetes, ICU admission during hospitalization for delivery, postpartum hospitalization, and an increased risk of mortality compared with pregnant women who did not have epilepsy.

Released: 19-Jun-2023 12:05 PM EDT
Acercar la atención de la epilepsia al hogar puede mejorar los resultados
International League Against Epilepsy

El acceso a la atención afecta a las personas con epilepsia en todo el mundo. Acercar la atención al hogar puede ayudar, pero ¿qué tal llevar la atención a la casa?

Newswise: Managing epilepsy in older adults
Released: 25-May-2023 11:05 AM EDT
Managing epilepsy in older adults
International League Against Epilepsy

What special considerations must physicians make when managing epilepsy in older adults? Who is considered an “older adult,” anyway? Dr. Anca Arbune interviews two authors of a recent critical review by an ILAE task force.



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