Filters close
Released: 1-May-2019 11:05 AM EDT
Myositis, a rare muscular inflammatory disease that often goes undiagnosed or misdiagnosed, disproportionately affects women of color
Myositis Association

Awareness campaign kicking off Myositis Awareness Month aims to ensure the over 75,000 people with the disease are diagnosed and get treated

Released: 26-Apr-2019 2:40 PM EDT
Occupational Therapy for Myositis
Myositis Association

The Myositis Association celebrated National Occupational Therapy Month in April with a conversation with Dr. Malin Regardt, an occupational therapist on TMA's Medical Advisory Board.

Released: 23-Feb-2019 6:05 AM EST
Peter Frampton diagnosed with rare muscle disease inclusion body myositis
Myositis Association

Legendary guitarist Peter Frampton announced Saturday that he has a rare, debilitating muscle disease called inclusion body myositis.

Released: 4-Feb-2019 11:05 AM EST
The Myositis Association Celebrates Rare
Myositis Association

Together with other rare disease organizations, The Myositis Association is encouraging those who live with myositis diseases to Celebrate Your Rare by speaking out about the challenges they face and the need for more research into the causes, treatments, and possible cures for these diseases.

Released: 27-Nov-2018 12:05 PM EST
The Myositis Association appoints new members to the Board of Directors
Myositis Association

The Myositis Association (TMA), the leading international patient organization dedicated to improving the lives of people affected by myositis, is pleased to announce the appointment of five new members to its Board of Directors.

Released: 27-Nov-2018 12:05 PM EST
The Myositis Association appoints new members to its Medical Advisory Board
Myositis Association

The Myositis Association (TMA), the leading international patient organization dedicated to improving the lives of people affected by myositis, is pleased to announce the appointment of three new members to its distinguished Medical Advisory Board.

8-Oct-2018 5:00 PM EDT
The Myositis Association announces 2018 research awards
Myositis Association

TMA is pleased to announce they have awarded three new myositis research grants.

Released: 28-Aug-2018 1:05 PM EDT
Muscle Disease Patients Gather to Learn About Myositis
Myositis Association

TMA hosts its Annual Patient Conference at the Louisville Marriott Downtown on September 6-9. With more than 500 myositis patients and family members in attendance, this conference promises to be the largest in TMA history.

Released: 7-Aug-2018 2:05 PM EDT
The Myositis Association Welcomes New Executive Director
Myositis Association

The Myositis Association is pleased to announce the appointment of Mary McGowan as Executive Director.

6-Jun-2018 2:05 PM EDT
The Myositis Association Updates and Upgrades Its Web Presence
Myositis Association

The Myositis Association announces the launch of its newly redesigned website, making it easier for visitors to access evidence-based information about all forms of the rare autoimmune muscle disease known as “myositis.”

Released: 1-May-2018 8:05 AM EDT
May is Myositis Awareness Month
Myositis Association

Myositis Awareness Month brings attention to a rare autoimmune disease of the muscle that can cause disability for children and adults.

19-Dec-2017 1:10 PM EST
New Classification Criteria for Inflammatory Myopathies a Breakthrough
Myositis Association

The ability to diagnose myositis diseases and treat them properly just improved immensely with the publication of new, evidence-based classification criteria.

Released: 28-Aug-2017 9:05 AM EDT
Muscle Disease Patients Gather to Learn About Myositis
Myositis Association

The Myositis Association (TMA) hosts their 2017 Annual Patient Conference September 7-10 at the Sheraton San Diego Hotel and Marina. With more than 80 presentations and nearly 500 myositis patients, friends, and family members in attendance, this conference promises to be the largest in TMA history.

Released: 21-Aug-2017 9:55 AM EDT
Personal Tragedy Gives Rare Disease Patient New Resolve
Myositis Association

Dan Seftick thought his biggest challenge in life was his rare disease, dermatomyositis. When his son Greg tragically died in an avalanche while hiking in Grand Tetons National Park, he discovered there can be much bigger mountains to climb.



close
0.12786