Latest News from: Vasculitis Foundation

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Newswise: Vasculitis Foundation’s Young Investigator Award Goes to Monash University Research Fellow
Released: 15-Jun-2020 8:30 AM EDT
Vasculitis Foundation’s Young Investigator Award Goes to Monash University Research Fellow
Vasculitis Foundation

Dragana Odobasic, PhD, a research fellow at Monash University in Melbourne, Australia, was awarded the Vasculitis Foundation’s (VF) “Dr. Chris Cox-Marinelli Young Investigator Award” in May for her study, Tolerogenic Dendritic Cells for Antigen-Specific Immunosuppression in MPO-ANCA Vasculitis. The award, a one-year grant totaling $49,822, was created in memory of Chris Cox-Marinelli, MD, who was a strong advocate for promoting the development of junior investigators toward a career in vasculitis.

Newswise: Join Actress Jamie Lee Curtis and the Vasculitis Foundation for a Virtual Pajama Party Benefit!
Released: 12-Jun-2020 6:05 PM EDT
Join Actress Jamie Lee Curtis and the Vasculitis Foundation for a Virtual Pajama Party Benefit!
Vasculitis Foundation

Tickets are on sale now for a fun-filled evening of vasculitis awareness and entertainment. Don’t miss it!

Newswise: Vasculitis Foundation Launches Vasculitis Visionaries Podcast Series
Released: 2-Jun-2020 2:45 PM EDT
Vasculitis Foundation Launches Vasculitis Visionaries Podcast Series
Vasculitis Foundation

The Vasculitis Foundation rolls out new podcast series, designed to educate and provide insight into rare, autoimmune blood vessel disorder.

Released: 22-May-2020 8:55 AM EDT
Register Now for Live COVID-19 Q&A Webinar Saturday with Vasculitis Experts
Vasculitis Foundation

Join the Vasculitis Foundation (VF) this Saturday, May 23, for a live Q&A webinar where vasculitis experts will discuss what they know about COVID-19 and immune-suppressed patients. The program starts at 9 a.m. Central Time.

Released: 1-May-2020 5:30 PM EDT
Vasculitis Foundation Kicks Off Vasculitis Awareness Month 2020 Observance in May
Vasculitis Foundation

The Race is On! That’s the theme for Vasculitis Awareness Month 2020, which runs May 1 through May 31, 2020, and shines a spotlight on vasculitis—a rare, but often serious autoimmune blood vessel disorder.

Newswise: Vasculitis Foundation Announces Healthcare Professionals Who Earned 2018 V-RED Award Honorable Mention
Released: 30-Jul-2018 1:05 PM EDT
Vasculitis Foundation Announces Healthcare Professionals Who Earned 2018 V-RED Award Honorable Mention
Vasculitis Foundation

This is an announcement about two doctors who received an honorable mention from the Vasculitis Foundation.

Newswise: Linda Brady, MD, Recognized by the Vasculitis Foundation (VF) with the 2018 V-RED Award
Released: 24-Jul-2018 2:30 PM EDT
Linda Brady, MD, Recognized by the Vasculitis Foundation (VF) with the 2018 V-RED Award
Vasculitis Foundation

This is an announcement about Dr. Linda Brady winning the 2018 V-RED Award from the Vasculitis Foundation. She was nominated by her patient for making a critical, early diagnosis of autoimmune vasculitis.

Released: 30-May-2018 6:20 PM EDT
Vasculitis Foundation Announces Winner and Honorable Mentions for the Annual 2018 V-RED Award
Vasculitis Foundation

The Vasculitis Foundation has given its annual V-RED Award to medical professionals who made a critical early diagnosis of vasculitis.

Released: 18-May-2018 11:05 AM EDT
Vasculitis Foundation Releases New Video, “What I Wish People Knew About Vasculitis” for Vasculitis Awareness Month 2018
Vasculitis Foundation

The VF has produced a new video as part of its Vasculitis Awareness Month campaign, that features patients sharing the one thing they wished people knew about their disease.

Newswise:Video Embedded vasculitis-foundation-releases-new-video-promoting-early-diagnosis-of-vasculitis-as-part-of-vasculitis-awareness-month-2018-campaign
VIDEO
Released: 11-May-2018 1:45 PM EDT
Vasculitis Foundation Releases New Video Promoting Early Diagnosis of Vasculitis as Part of Vasculitis Awareness Month 2018 Campaign
Vasculitis Foundation

The VF produced a new video called "Connect the Dots" especially for Vasculitis Awareness Month 2018. The short, animated video reminds medical professionals to "Think Vasculitis" when they have a patient exhibiting a cluster of chronic, unremarkable symptoms that don't respond to traditional treatment.

Newswise: Vasculitis Foundation Marks May 2018 as Vasculitis Awareness Month
Released: 2-May-2018 1:05 PM EDT
Vasculitis Foundation Marks May 2018 as Vasculitis Awareness Month
Vasculitis Foundation

The VF announces the launch of Vasculitis Awareness Month 2018 that runs through May. The VF is holding special webinars, providing educational materials, and featuring other resources to inform both the patient and medical communities about autoimmune vasculitis.

Newswise: Vasculitis Foundation Establishes “VF Bob Day” February 1, 2018; Celebrating Longtime Volunteer’s Contributions with Global Awareness Initiative
Released: 31-Jan-2018 9:05 PM EST
Vasculitis Foundation Establishes “VF Bob Day” February 1, 2018; Celebrating Longtime Volunteer’s Contributions with Global Awareness Initiative
Vasculitis Foundation

VF Bob is a new campaign launched by the Vasculitis Foundation to honor the late Bob Sahs, one of the organization's greatest awareness advocates. The goal of the campaign is to both spread awareness about autoimmune vasculitis, and to promote the work of the Vasculitis Foundation to support patients and fund research into vasculitis.

Newswise: Brandon’s Book Released – Going the Distance
Released: 18-Sep-2017 4:40 PM EDT
Brandon’s Book Released – Going the Distance
Vasculitis Foundation

Brandon Hudgins, professional long-distance runner, GPA/Wegener’s patient and leader of VF Team Brandon, has shared his story in his recently released book, “Going the Distance: The Journey of a Vasculitis Patient on the Road to Olympic Glory.”

Newswise: Vasculitis Foundation Holds International Vasculitis Symposium in Chicago, June 23-25
Released: 10-Jul-2017 1:05 PM EDT
Vasculitis Foundation Holds International Vasculitis Symposium in Chicago, June 23-25
Vasculitis Foundation

On June 23-25 the Vasculitis Foundation held its 2017 Vasculitis Symposium in Chicago. More than 300 patients, doctors, and researchers came together to present and learn the latest information concerning autoimmune vasculitis.

Newswise: Brandon Hudgins, 2016 Olympic Hopeful & “Victory Over Vasculitis” Founder, at the Vasculitis Foundation's 2017 International Vasculitis Symposium
Released: 15-Jun-2017 2:05 PM EDT
Brandon Hudgins, 2016 Olympic Hopeful & “Victory Over Vasculitis” Founder, at the Vasculitis Foundation's 2017 International Vasculitis Symposium
Vasculitis Foundation

Brandon Hudgins, an elite runner and autoimmune vasculitis patient, will be attending the Vasculitis Foundation's 2017 International Vasculitis Symposium, June 23-25, 2017, in Chicago. Hudgins was a qualifier for the 2016 Olympic Trials, and has the distinction of being only the 449th American to run a sub four-minute mile. Hudgins will be signing autographs and talking with other young adult vasculitis patients at the event.

Released: 15-Jun-2017 1:05 PM EDT
Physicians and Patients From 29 States and Around the World Attending Vasculitis Foundation's 2017 International Vasculitis Symposium June 23–25 in Chicago
Vasculitis Foundation

The 2017 Vasculitis Symposium in Chicago will bring together some of the world's leading experts in autoimmune vasculitis. Patients and their families will also be coming to learn the latest medical and research news about vasculitis.

Released: 16-May-2017 5:05 PM EDT
Autoimmune Vasculitis Specialists Presenting at the 2017 International Vasculitis Symposium June 23-25 in Chicago
Vasculitis Foundation

Some of the world's leading experts in the field of autoimmune vasculitis research will present at the 2017 International Vasculitis Symposium in Chicago. Sessions will include information about the latest vasculitis research, and treatment and management of autoimmune vasculitis.

Released: 9-May-2017 8:05 AM EDT
Vasculitis Foundation (VF) Statement on American Health Care Act (AHCA)
Vasculitis Foundation

The Vasculitis Foundation stands with National Organization of Rare Diseases' (NORD) regarding the American Health Care Act (AHCA) and its potential impact on rare disease patients

Released: 5-May-2017 10:05 AM EDT
Vasculitis Foundation Kicks Off 2017 Vasculitis Awareness Month
Vasculitis Foundation

The Vasculitis Foundation announces the launch of its month-long campaign to raise awareness about autoimmune vasculitis.

Released: 25-Apr-2017 2:05 PM EDT
Wisdom of a Ferocious Patient Advocate
Vasculitis Foundation

Celeste Lee, cherished wife, sister, daughter, mother, faithful friend, and passionate patient advocate, died at age 51 from the autoimmune disease vasculitis, surrounded by family and friends, both near and far. Celeste was a longtime member of the Vasculitis Foundation and a founding member of the North Carolina VF Support Group.

Released: 21-Feb-2017 1:05 PM EST
Vasculitis Foundation Opens Nominations For 2017 V RED Early Diagnosis Award
Vasculitis Foundation

The Vasculitis Foundation (VF) has launched its 2017 V RED Award campaign to honor those physicians who have made a critical early diagnosis of the rare autoimmune vasculitis disease with its Recognizing Excellence in Diagnostics (RED) Award

Released: 7-Feb-2017 4:05 PM EST
2017 International Vasculitis Foundation Symposium Set for June 23–25 at Chicago Marriott O’Hare in Chicago, Illinois
Vasculitis Foundation

The Vasculitis Foundation announced today that the 2017 International Vasculitis Symposium will take place from Friday, June 23 to Sunday, June 25 at the Chicago Marriott O’Hare in Chicago, Illinois.

Released: 20-Jan-2017 2:05 PM EST
The Vasculitis Foundation 2017 Patient & Family Vasculitis Baltimore Regional Conference
Vasculitis Foundation

The Vasculitis Foundation will hold its 2017 Baltimore Regional Conference on Saturday, February 4, in Bethesda, Maryland.

Newswise: Vasculitis Foundation Releases 2016 Vasculitis Foundation (VF) Research Funding Report
Released: 12-Jan-2017 10:05 AM EST
Vasculitis Foundation Releases 2016 Vasculitis Foundation (VF) Research Funding Report
Vasculitis Foundation

This report details the VF's accomplishments since its Second International Vasculitis Research Consensus Conference held in Chicago, Illinois in 2012. During the conference, participants evaluated programs and explored new areas of inquiry that the Foundation could fund over the next five years.

Released: 17-Nov-2016 4:05 PM EST
Vasculitis Foundation and Northwestern Memorial Hospital Launch Vasculitis Clinical Research Program in Chicago
Vasculitis Foundation

The Vasculitis Foundation and Northwestern Memorial Hospital in Chicago establish new center for patients with autoimmune vasculitis.

Released: 24-Oct-2016 11:55 AM EDT
Breakthrough Therapy for Patients with Giant Cell Arteritis
Vasculitis Foundation

FDA Grants Breakthrough Therapy Designation for GENENTECH’S Actemra® (tocilizumab) in Giant Cell Arteritis, A form of vasculitis

Newswise: Minnesota Obstetrician/Gynecologist Diagnoses Rare Disease; Receives the Vasculitis Foundation’s 2016 VF-RED Award
Released: 23-Aug-2016 9:05 AM EDT
Minnesota Obstetrician/Gynecologist Diagnoses Rare Disease; Receives the Vasculitis Foundation’s 2016 VF-RED Award
Vasculitis Foundation

Dr. Jeffrey Raines, a General Obstetrician/Gynecologist and supervisor for the Obstetric/Gynecology Department of Fairview Medical Group Fairview Medical Center in Maple Grove, Minnesota earned a special award for his critical early diagnosis of vasculitis.

Released: 17-Aug-2016 9:05 PM EDT
Medical Professional Diagnoses Rare Disease; Receives the Vasculitis Foundation’s 2016 VF-RED Award
Vasculitis Foundation

Monroe Clinic hospitalist, Kate Kinney, is one of three medical professionals to earn the 2016 Vasculitis Foundation V-RED Award honoring her early diagnosis of a rare, autoimmune vasculitis disease. Kinney and her team's early identification of the illness allowed the patient to begin critical treatment before any further organ damage could occur.

Newswise: Dr. Seth Sullivan Honored with Vasculitis Early Diagnosis Award
Released: 17-Aug-2016 12:05 PM EDT
Dr. Seth Sullivan Honored with Vasculitis Early Diagnosis Award
Vasculitis Foundation

Dr. Seth Sullivan was awarded the 2016 VF RED Award for his work in diagnosing a patient with vasculitis. The Vasculitis Foundation created the award to honor those medical professionals who have made an early diagnosis of the rare, autoimmune disease, thus improving the patient's outcome.

Released: 15-Aug-2016 4:05 PM EDT
Medical Professionals Win Vasculitis Foundation Award for Early Diagnosis of Rare Disease
Vasculitis Foundation

The Vasculitis Foundation awarded three doctors the 2016 V-RED Award for making an early diagnosis of vasculitis, a rare autoimmune disease.

Released: 27-Jun-2016 9:00 AM EDT
Vasculitis Patient Brandon Hudgins Clinches Qualifying Spot for 2016 U.S. Olympic Trials
Vasculitis Foundation

Vasculitis Foundation's "VF Team Brandon" supports Olympic hopeful's dream

Newswise:Video Embedded the-vasculitis-foundation-2016-awareness-video
VIDEO
Released: 8-Jun-2016 3:05 PM EDT
The Vasculitis Foundation 2016 Awareness Video
Vasculitis Foundation

A short video produced by the Vasculitis Foundation to help raise awareness about vasculitis, a rare autoimmune disease. Also, the video promotes the non-profit, Vasculitis Foundation.

Released: 3-Jun-2016 8:05 PM EDT
Vasculitis Foundation Launches 30th Anniversary Campaign
Vasculitis Foundation

The Vasculitis Foundation (VF) launched its 30th Anniversary celebration to showcase its contributions to raising awareness about autoimmune vasculitis, educating patients and funding research on the rare disease.

Newswise: Vasculitis Foundation Announces Partnership with Olympic Hopeful and Vasculitis Patient Brandon Hudgins to Create Awareness of Autoimmune Vasculitis
Released: 3-Jun-2016 1:05 PM EDT
Vasculitis Foundation Announces Partnership with Olympic Hopeful and Vasculitis Patient Brandon Hudgins to Create Awareness of Autoimmune Vasculitis
Vasculitis Foundation

The Vasculitis Foundation (VF) is partnering with Olympic hopeful and vasculitis patient Brandon Hudgins to create Victory Over Vasculitis: VF Team Brandon." The initiative is designed to support Hudgins' efforts to increase awareness of his rare, autoimmune disease as he attempts to qualify for the United States Olympic Team.

Released: 11-May-2016 10:05 AM EDT
Vasculitis Awareness Month 2016
Vasculitis Foundation

Details about Vasculitis Awareness Month. This year's theme is, "Victory over Vasculitis", and the Vasculitis Foundation will use the month of May to raise awareness about this rare, autoimmune disease.

Released: 28-Oct-2015 10:05 AM EDT
Vasculitis Foundation Wins Award for Video
Vasculitis Foundation

VF-produced video wins in the Best Long Video Category in national competition recognizing best nonprofit marketing work.

Released: 21-Oct-2015 8:05 AM EDT
Vasculitis Foundation October Webinar to Focus on Pregnancy and Vasculitis
Vasculitis Foundation

The webinar will focus on issues related to pregnancy and vasculitis.

Released: 13-Aug-2015 6:05 PM EDT
Vasculitis Foundation Announces August Road Map to Wellness Webinar
Vasculitis Foundation

The Vasculitis Foundation (VF) has announced its next webinar, ““Back To School with Vasculitis: Managing your drugs, treatments, social life, doctors’ appointments and oh yes, your classes!”

Released: 13-Aug-2015 9:00 AM EDT
The Vasculitis Foundation Announces Selection of Two New Research Studies on EGPA/Churg Strauss
Vasculitis Foundation

The Vasculitis Foundation is pleased to announce it has selected two new research studies on eosinophilic granulomatosis with polyangiitis (EGPA) /Churg Strauss for funding in the amount of $98,000.

Released: 12-Aug-2015 10:30 AM EDT
The Vasculitis Foundation Announces Election of Three New Members to the Board of Directors
Vasculitis Foundation

Three new members, Dr. Jeffrey Fishbein, Dr. Peter Grayson, and Dr. Jason M. Springer have been elected to the Vasculitis Foundation Board of Directors.

Released: 11-Aug-2015 5:00 PM EDT
The Vasculitis Foundation Announces the Gary S. Hoffman Vasculitis Foundation Fellowship
Vasculitis Foundation

The Vasculitis Foundation is pleased to announce the Gary S. Hoffman Vasculitis Foundation Fellowship in honor of Dr. Hoffman.

Newswise:Video Embedded new-vasculitis-study-launches
VIDEO
Released: 11-Aug-2015 2:05 PM EDT
New Vasculitis Study Launches
Vasculitis Foundation

Work disability associated with rheumatic diseases accounts for an important part of the costs of these conditions, in addition to direct treatment costs, especially with biological agents. Interest has been growing in studying work disability associated with rheumatoid arthritis, but only a few studies have investigated vasculitis. The purpose of this study is to learn about the impact of vasculitis on employment and income in patients with different systemic vasculitides.

Released: 3-Aug-2015 2:05 PM EDT
VF Funds New Study: Immune Regulation by IL-6 in Giant Cell Arteritis
Vasculitis Foundation

The Vasculitis Foundation (VF) is funding a new, one-year study led by principal investigator, Jonathan Choy, Ph.D., from Simon Fraser University, Burnaby, British Columbia Canada.

Released: 3-Aug-2015 2:05 PM EDT
Vasculitis Foundation Funds New Study: “Role of LAMP-2 in Tolerance to ANCA Antigens”
Vasculitis Foundation

The Vasculitis Foundation (VF) funded a new one year study led by Renate Kain, MD, from the Medical University of Vienna, Austria. The VF provided the $50,000 award through its Vasculitis Research Program.

Newswise: Vasculitis Patient-Powered Research Network Approved for $1.4 Million in Second Phase of Development of PCORnet, a New National Clinical Research Network
Released: 22-Jul-2015 5:05 PM EDT
Vasculitis Patient-Powered Research Network Approved for $1.4 Million in Second Phase of Development of PCORnet, a New National Clinical Research Network
Vasculitis Foundation

The Vasculitis Patient-Powered Research Network (www.vpprn.org) has been approved to receive a three-year $1.4 million award by the Patient-Centered Outcomes Research Institute (PCORI) as part of the second phase of the National Patient-Centered Clinical Research Network (PCORnet).

Released: 22-May-2015 12:05 PM EDT
Register to Attend the International Vasculitis Symposium
Vasculitis Foundation

Experts from the Mayo Clinic, Cleveland Clinic, Stanford, PENN, UNC, and the NIH will offer education and networking opportunities for people, families, and friends living with vasculitis, a family of rare autoimmune diseases.


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