Vasculitis Foundation

Vasculitis Foundation Kicks Off Vasculitis Awareness Month 2020 Observance in May

The Vasculitis Foundation rallies community for a month of daily actions designed to educate the public about this rare, autoimmune blood vessel disorder—with social distancing in mind.

Newswise — (Kansas City, MO): The Race is On! That’s the theme for Vasculitis Awareness Month 2020, which runs May 1 through May 31, 2020, and shines a spotlight on vasculitis—a rare, but often serious autoimmune blood vessel disorder. 

“This year’s Vasculitis Awareness Month (VAM) is happening during a challenging time for everyone,” said Joyce Kullman, Executive Director of the Vasculitis Foundation (VF). “COVID-19 has changed the world we live in. But there is still a critical need to raise awareness of this disease and support vasculitis research for better treatments and a cure.”

Kullman said the VF has tailored its awareness messaging and activities for the times we’re living in.

“COVID-19 gives us a unique opportunity to help the general public recognize that people with vasculitis and other autoimmune disorders are at a higher risk of infection because they are immune-compromised,” she said. “Social distancing is so important to help protect ourselves and our loved ones. But we can’t let COVID-19 stop us in our mission to improve the lives of people affected by this disease.”   

With that in mind, the VF will offer an interactive VAM calendar of simple daily actions and activities to raise awareness in May—right from the safety and comfort of home. The calendar can be viewed and downloaded at: https://www.vasculitisfoundation.org/awareness/.

Here’s a sample of what’s going on during Vasculitis Awareness Month:

  • Vasculitis Awareness Month 2020 Video: Every year, the VF produces a new video that captures the spirit of raising awareness about vasculitis. This year’s video will stress the importance of racing toward more research for better treatments and improving the quality of life for patients worldwide. View and share it! 
  • Live Webinar on Vasculitis Research: The VF and its research arm, the Vasculitis Patient-Powered Research Network, will host a live webinar with leading vasculitis researchers Tanaz A. Kermani, MD, Peter Grayson, MD, and Jennifer Gordon, PhD. They’ll discuss the most impactful research studies of 2019 and the future of vasculitis research in a new world with COVID-19.
  • V-RED Award Winners: The VF’s 2020 Recognizing Excellence in Diagnostics (V-RED) award winners will be announced in May. The V-RED program calls on patients worldwide to nominate a medical professional for making a critical, early diagnosis of vasculitis.
  • VAM Matching Gift Fundraiser: A special donor is matching gifts up to $10,000 in support of VAM 2020.
  • Life Hacks for Living with Vasculitis: Promote self-care during these stressful times by submitting your own short video describing the “life hacks” you use to improve daily life with vasculitis.
  • Say it Like You Meme It! Spread awareness by sharing our memes on your social media channels.
  • Wear Your Story, Share Your Story: Buy a VAM 2020 T-Shirt and spread vasculitis awareness! 
  • And More!

“We hope people will join us in our vasculitis awareness activities this month as their personal circumstances allow,” Kullman added. “Our thoughts go out to everyone dealing with vasculitis and now COVID-19.” 

The Vasculitis Foundation thanks its sponsors Amgen, ChemoCentryx, Genentech, and GSK, for their generous support of Vasculitis Awareness Month 2020, and the V-RED awards.  

 

For more information about Vasculitis Awareness Month, please visit: https://www.vasculitisfoundation.org/awareness/.

 

About VasculitisVasculitis is a rare autoimmune disease characterized by inflammation of the blood vessels, which can restrict blood flow and damage vital organs and tissues. There are nearly 20 different forms of the disease. Vasculitis impacts every age group and gender.   

About the Vasculitis FoundationSince 1986, the Vasculitis Foundation has empowered patients through disease education, raising vasculitis awareness in the general public and medical community, and funding research to determine the cause, develop better treatments, and discover a cure.  

The VF is committed to improving the lives of current and future patients and is the definitive resource for patients, family members, medical professionals, and researchers seeking information about vasculitis. Visit www.vasculitisfoundation.org.

###




Filters close

Showing results

110 of 3409
Newswise: Last-resort life support option helped majority of critically ill COVID-19 patients survive, global study shows
24-Sep-2020 3:20 PM EDT
Last-resort life support option helped majority of critically ill COVID-19 patients survive, global study shows
Michigan Medicine - University of Michigan

It saved lives in past epidemics of lung-damaging viruses. Now, the life-support option known as ECMO appears to be doing the same for many of the critically ill COVID-19 patients who receive it. Patients in a new international study faced a staggeringly high risk of death, as ventilators failed to support their lungs. But after they were placed on ECMO, their actual death rate was less than 40%.

Released: 25-Sep-2020 5:05 PM EDT
Case Western Reserve University researchers to examine how COVID-19 ravaged America’s nursing homes
Case Western Reserve University

Within a few months, federal officials reported that one of every five nursing homes had experienced a death from the novel coronavirus. Not long after, several media outlets published independent analysis finding that an estimated 40% of the fatalities related to COVID-19 took place in nursing homes. Rather than surrender to the terrifying trend, Case Western Reserve researchers saw an opportunity to help.

Released: 25-Sep-2020 4:15 PM EDT
Faced with pandemic shortages, researchers combine heat and humidity to disinfect N95 masks for reuse
SLAC National Accelerator Laboratory

They found that gently heating N95 masks in high relative humidity could inactivate SARS-CoV-2 virus trapped within the masks, without degrading the masks’ performance.

Released: 25-Sep-2020 3:30 PM EDT
Team assessing if dual-antibody injection prevents COVID-19 illness
University of Texas Health Science Center at Houston

A combination antibody treatment for preventing COVID-19 illness in individuals who have had sustained exposure to someone with the virus is being studied by researchers at The University of Texas Health Science Center at Houston (UTHealth). The clinical trial is enrolling patients at Harris Health System’s Lyndon B. Johnson Hospital.

Released: 25-Sep-2020 2:30 PM EDT
Yes, Wisconsin Republicans have the power to overturn the extended mask mandate order by Governor Evers
Newswise

Republicans have the legal power to reverse the order by Wisconsin Governor Tony Evers that extends the mask mandate.

Released: 25-Sep-2020 1:55 PM EDT
How do Americans view the virus? Anthropology professor examines attitudes of COVID
Northern Arizona University

In her ongoing research about Americans' responses to the COVID-19 pandemic, Northern Arizona University anthropology professor Lisa Hardy and her collaborators have talked to dozens of people.

Released: 25-Sep-2020 12:55 PM EDT
During pandemic, racism puts additional stress on Asian Americans
Massachusetts General Hospital

Many people are feeling anxious during these uncertain times as they navigate the risks associated with COVID-19 and experience the tension from physical distancing or isolation for what can seem like an eternity.

Released: 25-Sep-2020 12:55 PM EDT
COVID-19 shapes political approval ratings
University of North Carolina at Chapel Hill

Approval ratings of political leaders surged in the early days of the COVID-19 pandemic, according to a new study published in the Proceedings of the National Academy of Sciences.

Released: 25-Sep-2020 12:40 PM EDT
ASU Researchers Receive $6m State Contract to Develop Rapid, 20-Minute Covid-19 Saliva Test
Arizona State University (ASU)

As the world manages through the coronavirus pandemic, Arizona State University continues its work to discover and develop easier and more widespread COVID-19 testing to assist in managing the virus.

Released: 25-Sep-2020 11:55 AM EDT
Scholars untangle marketing's complex role in understanding political activities
American Marketing Association (AMA)

As 2020 began, many pundits predicted a politically charged year, but few predicted that it would include a global pandemic overtaxing healthcare resources, strained U.S. race relations resulting in mass demonstrations across the globe, devastating fires consuming massive swaths of the United States, and a catastrophic global economic downturn.


Showing results

110 of 3409

close
1.6531