Vasculitis Foundation

Vasculitis Foundation Kicks Off Vasculitis Awareness Month 2020 Observance in May

The Vasculitis Foundation rallies community for a month of daily actions designed to educate the public about this rare, autoimmune blood vessel disorder—with social distancing in mind.

Newswise — (Kansas City, MO): The Race is On! That’s the theme for Vasculitis Awareness Month 2020, which runs May 1 through May 31, 2020, and shines a spotlight on vasculitis—a rare, but often serious autoimmune blood vessel disorder. 

“This year’s Vasculitis Awareness Month (VAM) is happening during a challenging time for everyone,” said Joyce Kullman, Executive Director of the Vasculitis Foundation (VF). “COVID-19 has changed the world we live in. But there is still a critical need to raise awareness of this disease and support vasculitis research for better treatments and a cure.”

Kullman said the VF has tailored its awareness messaging and activities for the times we’re living in.

“COVID-19 gives us a unique opportunity to help the general public recognize that people with vasculitis and other autoimmune disorders are at a higher risk of infection because they are immune-compromised,” she said. “Social distancing is so important to help protect ourselves and our loved ones. But we can’t let COVID-19 stop us in our mission to improve the lives of people affected by this disease.”   

With that in mind, the VF will offer an interactive VAM calendar of simple daily actions and activities to raise awareness in May—right from the safety and comfort of home. The calendar can be viewed and downloaded at: https://www.vasculitisfoundation.org/awareness/.

Here’s a sample of what’s going on during Vasculitis Awareness Month:

  • Vasculitis Awareness Month 2020 Video: Every year, the VF produces a new video that captures the spirit of raising awareness about vasculitis. This year’s video will stress the importance of racing toward more research for better treatments and improving the quality of life for patients worldwide. View and share it! 
  • Live Webinar on Vasculitis Research: The VF and its research arm, the Vasculitis Patient-Powered Research Network, will host a live webinar with leading vasculitis researchers Tanaz A. Kermani, MD, Peter Grayson, MD, and Jennifer Gordon, PhD. They’ll discuss the most impactful research studies of 2019 and the future of vasculitis research in a new world with COVID-19.
  • V-RED Award Winners: The VF’s 2020 Recognizing Excellence in Diagnostics (V-RED) award winners will be announced in May. The V-RED program calls on patients worldwide to nominate a medical professional for making a critical, early diagnosis of vasculitis.
  • VAM Matching Gift Fundraiser: A special donor is matching gifts up to $10,000 in support of VAM 2020.
  • Life Hacks for Living with Vasculitis: Promote self-care during these stressful times by submitting your own short video describing the “life hacks” you use to improve daily life with vasculitis.
  • Say it Like You Meme It! Spread awareness by sharing our memes on your social media channels.
  • Wear Your Story, Share Your Story: Buy a VAM 2020 T-Shirt and spread vasculitis awareness! 
  • And More!

“We hope people will join us in our vasculitis awareness activities this month as their personal circumstances allow,” Kullman added. “Our thoughts go out to everyone dealing with vasculitis and now COVID-19.” 

The Vasculitis Foundation thanks its sponsors Amgen, ChemoCentryx, Genentech, and GSK, for their generous support of Vasculitis Awareness Month 2020, and the V-RED awards.  

 

For more information about Vasculitis Awareness Month, please visit: https://www.vasculitisfoundation.org/awareness/.

 

About VasculitisVasculitis is a rare autoimmune disease characterized by inflammation of the blood vessels, which can restrict blood flow and damage vital organs and tissues. There are nearly 20 different forms of the disease. Vasculitis impacts every age group and gender.   

About the Vasculitis FoundationSince 1986, the Vasculitis Foundation has empowered patients through disease education, raising vasculitis awareness in the general public and medical community, and funding research to determine the cause, develop better treatments, and discover a cure.  

The VF is committed to improving the lives of current and future patients and is the definitive resource for patients, family members, medical professionals, and researchers seeking information about vasculitis. Visit www.vasculitisfoundation.org.

###




Filters close

Showing results

1120 of 3411
Released: 25-Sep-2020 12:55 PM EDT
COVID-19 shapes political approval ratings
University of North Carolina at Chapel Hill

Approval ratings of political leaders surged in the early days of the COVID-19 pandemic, according to a new study published in the Proceedings of the National Academy of Sciences.

Released: 25-Sep-2020 12:40 PM EDT
ASU Researchers Receive $6m State Contract to Develop Rapid, 20-Minute Covid-19 Saliva Test
Arizona State University (ASU)

As the world manages through the coronavirus pandemic, Arizona State University continues its work to discover and develop easier and more widespread COVID-19 testing to assist in managing the virus.

Released: 25-Sep-2020 11:55 AM EDT
Scholars untangle marketing's complex role in understanding political activities
American Marketing Association (AMA)

As 2020 began, many pundits predicted a politically charged year, but few predicted that it would include a global pandemic overtaxing healthcare resources, strained U.S. race relations resulting in mass demonstrations across the globe, devastating fires consuming massive swaths of the United States, and a catastrophic global economic downturn.

Released: 25-Sep-2020 10:50 AM EDT
COVID-19 Spurs Anxious, Upsetting Dreams
American Psychological Association (APA)

The anxiety, stress and worry brought on by COVID-19 is not limited to daytime hours. The pandemic is affecting our dreams as well, infusing more anxiety and negative emotions into dreams and spurring dreams about the virus itself, particularly among women, according to research published by the American Psychological Association.

Released: 25-Sep-2020 10:15 AM EDT
Risk Communication Expert Offers Public Health Guide to COVID-19 Retweets
University at Albany, State University of New York

Researchers analyzed 150,000 tweets about COVID-19 from about 700 state and local agencies between February and April 2020 to see what factors led to the most retweets.

access_time Embargo lifts in 2 days
Embargo will expire: 30-Sep-2020 8:00 AM EDT Released to reporters: 25-Sep-2020 10:00 AM EDT

A reporter's PressPass is required to access this story until the embargo expires on 30-Sep-2020 8:00 AM EDT The Newswise PressPass gives verified journalists access to embargoed stories. Please log in to complete a presspass application. If you have not yet registered, please Register. When you fill out the registration form, please identify yourself as a reporter in order to advance to the presspass application form.

Newswise: World Lung Day 2020: Respiratory Groups Call for Research to Prevent, Detect and Treat Respiratory Infections
Released: 25-Sep-2020 9:45 AM EDT
World Lung Day 2020: Respiratory Groups Call for Research to Prevent, Detect and Treat Respiratory Infections
American Thoracic Society (ATS)

Today, on World Lung Day (WLD), the American Thoracic Society is united with members of the Forum of International Respiratory Societies (FIRS) and WLD partner organizations to advocate for respiratory health globally and call for more research to prevent, detect and treat respiratory infections.

Newswise: Diaphragm Pacing can Enhance Recovery and
Weaning from Mechanical Ventilation in Cardiac Surgery, Small Series Concludes
Released: 25-Sep-2020 8:55 AM EDT
Diaphragm Pacing can Enhance Recovery and Weaning from Mechanical Ventilation in Cardiac Surgery, Small Series Concludes
University Hospitals Cleveland Medical Center

Surgeons at University Hospitals Cleveland Medical Center have improved the prognosis of several cardiac patients after emergency FDA approval of a diaphragm pacing device.


Showing results

1120 of 3411

close
1.54951