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Alexandria, VA USA

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Myositis, a rare muscular inflammatory disease that often goes undiagnosed or misdiagnosed, disproportionately affects women of color

Awareness campaign kicking off Myositis Awareness Month aims to ensure the over 75,000 people with the disease are diagnosed and get treated
1-May-2019 11:05 AM EDT Add to Favorites

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Occupational Therapy for Myositis

The Myositis Association celebrated National Occupational Therapy Month in April with a conversation with Dr. Malin Regardt, an occupational therapist on TMA's Medical Advisory Board.
26-Apr-2019 2:40 PM EDT Add to Favorites

Peter Frampton diagnosed with rare muscle disease inclusion body myositis

Legendary guitarist Peter Frampton announced Saturday that he has a rare, debilitating muscle disease called inclusion body myositis.
23-Feb-2019 6:05 AM EST Add to Favorites

The Myositis Association Celebrates Rare

Together with other rare disease organizations, The Myositis Association is encouraging those who live with myositis diseases to Celebrate Your Rare by speaking out about the challenges they face and the need for more research into the causes,...
4-Feb-2019 11:05 AM EST Add to Favorites

The Myositis Association appoints new members to the Board of Directors

The Myositis Association (TMA), the leading international patient organization dedicated to improving the lives of people affected by myositis, is pleased to announce the appointment of five new members to its Board of Directors.
27-Nov-2018 12:05 PM EST Add to Favorites

The Myositis Association appoints new members to its Medical Advisory Board

The Myositis Association (TMA), the leading international patient organization dedicated to improving the lives of people affected by myositis, is pleased to announce the appointment of three new members to its distinguished Medical Advisory Board.
27-Nov-2018 12:05 PM EST Add to Favorites

The Myositis Association announces 2018 research awards

TMA is pleased to announce they have awarded three new myositis research grants.
8-Oct-2018 5:00 PM EDT Add to Favorites

Muscle Disease Patients Gather to Learn About Myositis

TMA hosts its Annual Patient Conference at the Louisville Marriott Downtown on September 6-9. With more than 500 myositis patients and family members in attendance, this conference promises to be the largest in TMA history.
28-Aug-2018 1:05 PM EDT Add to Favorites


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About

The Myositis Association is the leading international support and education organization for people with myositis, including polymyositis, dermatomyositis, necrotizing myopathy, and inclusion body myositis. A member-supported non-profit organization based in Alexandria, Virginia, TMA provides patient education and advocacy, facilitates patient support groups, hosts an annual patient conference, engages the medical community in educating physicians about these rare diseases, and funds research into the causes, treatments, and possible cures for myositis.

Contacts

Linda Kobert
Research and Communications Director

linda@myositis.org

434-882-2189

Mary McGowan
Executive Director

McGowan@myositis.org

703-553-2631

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