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Alexandria, VA USA

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The Myositis Association announces 2018 research awards

TMA is pleased to announce they have awarded three new myositis research grants.
8-Oct-2018 5:00 PM EDT Add to Favorites

Muscle Disease Patients Gather to Learn About Myositis

TMA hosts its Annual Patient Conference at the Louisville Marriott Downtown on September 6-9. With more than 500 myositis patients and family members in attendance, this conference promises to be the largest in TMA history.
28-Aug-2018 1:05 PM EDT Add to Favorites

The Myositis Association Welcomes New Executive Director

The Myositis Association is pleased to announce the appointment of Mary McGowan as Executive Director.
7-Aug-2018 2:05 PM EDT Add to Favorites

The Myositis Association Updates and Upgrades Its Web Presence

The Myositis Association announces the launch of its newly redesigned website, making it easier for visitors to access evidence-based information about all forms of the rare autoimmune muscle disease known as “myositis.”
6-Jun-2018 2:05 PM EDT Add to Favorites

May is Myositis Awareness Month

Myositis Awareness Month brings attention to a rare autoimmune disease of the muscle that can cause disability for children and adults.
1-May-2018 8:05 AM EDT Add to Favorites

New Classification Criteria for Inflammatory Myopathies a Breakthrough

The ability to diagnose myositis diseases and treat them properly just improved immensely with the publication of new, evidence-based classification criteria.
19-Dec-2017 1:10 PM EST Add to Favorites

Muscle Disease Patients Gather to Learn About Myositis

The Myositis Association (TMA) hosts their 2017 Annual Patient Conference September 7-10 at the Sheraton San Diego Hotel and Marina. With more than 80 presentations and nearly 500 myositis patients, friends, and family members in attendance, this...
28-Aug-2017 9:05 AM EDT Add to Favorites

Personal Tragedy Gives Rare Disease Patient New Resolve

Dan Seftick thought his biggest challenge in life was his rare disease, dermatomyositis. When his son Greg tragically died in an avalanche while hiking in Grand Tetons National Park, he discovered there can be much bigger mountains to climb.
21-Aug-2017 9:55 AM EDT Add to Favorites

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The Myositis Association is the leading international support and education organization for people with myositis, including polymyositis, dermatomyositis, necrotizing myopathy, and inclusion body myositis. A member-supported non-profit organization based in Alexandria, Virginia, TMA provides patient education and advocacy, facilitates patient support groups, hosts an annual patient conference, engages the medical community in educating physicians about these rare diseases, and funds research into the causes, treatments, and possible cures for myositis.


Linda Kobert
Research and Communications Director



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