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Awareness campaign kicking off Myositis Awareness Month aims to ensure the over 75,000 people with the disease are diagnosed and get treated

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The Myositis Association celebrated National Occupational Therapy Month in April with a conversation with Dr. Malin Regardt, an occupational therapist on TMA's Medical Advisory Board.

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Legendary guitarist Peter Frampton announced Saturday that he has a rare, debilitating muscle disease called inclusion body myositis.

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Together with other rare disease organizations, The Myositis Association is encouraging those who live with myositis diseases to Celebrate Your Rare by speaking out about the challenges they face and the need for more research into the causes, treatments, and possible cures for these diseases.

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The Myositis Association (TMA), the leading international patient organization dedicated to improving the lives of people affected by myositis, is pleased to announce the appointment of five new members to its Board of Directors.

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The Myositis Association (TMA), the leading international patient organization dedicated to improving the lives of people affected by myositis, is pleased to announce the appointment of three new members to its distinguished Medical Advisory Board.

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TMA is pleased to announce they have awarded three new myositis research grants.

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TMA hosts its Annual Patient Conference at the Louisville Marriott Downtown on September 6-9. With more than 500 myositis patients and family members in attendance, this conference promises to be the largest in TMA history.

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The Myositis Association is pleased to announce the appointment of Mary McGowan as Executive Director.

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The Myositis Association announces the launch of its newly redesigned website, making it easier for visitors to access evidence-based information about all forms of the rare autoimmune muscle disease known as “myositis.”

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Myositis Awareness Month brings attention to a rare autoimmune disease of the muscle that can cause disability for children and adults.

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The ability to diagnose myositis diseases and treat them properly just improved immensely with the publication of new, evidence-based classification criteria.

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The Myositis Association (TMA) hosts their 2017 Annual Patient Conference September 7-10 at the Sheraton San Diego Hotel and Marina. With more than 80 presentations and nearly 500 myositis patients, friends, and family members in attendance, this conference promises to be the largest in TMA history.

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Dan Seftick thought his biggest challenge in life was his rare disease, dermatomyositis. When his son Greg tragically died in an avalanche while hiking in Grand Tetons National Park, he discovered there can be much bigger mountains to climb.