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Released: 28-Sep-2016 11:05 AM EDT
LBDA‘s New White Paper Explores the State of the Science and the Unprecedented Opportunity to Advance the Understanding and Treating Lewy Body Dementia
Lewy Body American Association of Colleges of Nursing (AACN)Dementia Association

The Lewy Body Dementia Association (LBDA) announced a new white paper that explores the state of the science for the most misdiagnosed form of dementia. The white paper was developed to create an awareness that there are increasing research opportunities to gain critical insights into LBD.

Released: 28-Sep-2016 10:05 AM EDT
LBDA Shines a Light on Lewy Body Dementia During October’s Lewy Body Awareness Month
Lewy Body American Association of Colleges of Nursing (AACN)Dementia Association

To drive awareness of a common but little-known dementia, Lewy body dementia (LBD), the Lewy Body Dementia Association and families across the nation stand together in solidarity, making October, Lewy Body Awareness Month.

Released: 20-Jul-2016 3:05 PM EDT
The Lewy Body Dementia Association and HCR ManorCare Join Together to Provide Support for Lewy Body Dementia Families
Lewy Body American Association of Colleges of Nursing (AACN)Dementia Association

Atlanta, Ga - 07/20/2016 - The Lewy Body Dementia Association (LBDA) and HCR ManorCare announced today that the two organizations are working together to provide a collaborative approach to providing support to those affected by Lewy body dementia.

Released: 3-May-2016 2:05 PM EDT
Lewy Body Dementia Association Addresses the Need for a Common Language on Dementia
Lewy Body American Association of Colleges of Nursing (AACN)Dementia Association

Atlanta, GA—05/3/16— Angela Taylor, Director of Programs for The Lewy Body Dementia Association(LBDA) recently addressed attendees at the National Institutes of Health’s 2016 Alzheimer’s Disease-Related Dementia (ADRD) Summit on the need for an open national dialog on changing the nomenclature frequently used to describe different forms of dementia.

Released: 1-Mar-2016 2:05 PM EST
Kathleen Anduze LBDA Dorothy Mangurian Volunteer of the Year Award
Lewy Body American Association of Colleges of Nursing (AACN)Dementia Association

The Lewy Body Dementia Association (LBDA) Board of Directors has named Kathleen Anduze, the recipient of the newly re-named LBDA Dorothy Mangurian Volunteer of the Year Award.

Released: 4-Nov-2015 11:05 AM EST
LBDA Website Crashes as Public Responds to New Robin Williams Story
Lewy Body American Association of Colleges of Nursing (AACN)Dementia Association

Yesterday, Susan Williams, Robin Williams’ widow, spoke on Good Morning America (GMA) and in other media, about it taking the past year for her to learn that Robin was suffering from Lewy body dementia (LBD), which she believes led him to take his own life. Susan Williams explained that the original Parkinson’s diagnosis did not cover all of his symptoms, and he was unaware of the LBD diagnosis when he died.

Released: 31-Jan-2015 8:00 AM EST
Hockey Legend Stan Mikita Suspected to Have Common, Yet Little Known Dementia
Lewy Body American Association of Colleges of Nursing (AACN)Dementia Association

Lewy Body Dementia Association offers support to the family, friends and fans of Stan Mikita.

Released: 19-Dec-2014 11:55 AM EST
The Dementia that is NOT Alzheimer’s Disease
Lewy Body American Association of Colleges of Nursing (AACN)Dementia Association

The term Alzheimer's is frequently used to describe all dementias even though there are many different causes for dementia. Lewy body dementia affects 1.4 million American and is frequently misdiagnosed.

   
Released: 10-Nov-2014 5:25 PM EST
Did Robin Williams Have Dementia?
Lewy Body American Association of Colleges of Nursing (AACN)Dementia Association

Lewy Body Dementia medical expert explains the conflicting information that was revealed in the autopsy of the late actor/comedian Robin Williams. Relation between Parkinson's disease and dementia with Lewy Body is described.

Released: 20-Oct-2014 1:00 PM EDT
Award Winning Photographer, Robert Whitman, Partners with Lewy Body Dementia Association
Lewy Body American Association of Colleges of Nursing (AACN)Dementia Association

Award winning photographer, Robert Whitman, captures lives of those affected with Lewy Body Dementia in a poignant collection of original photography.

Released: 1-Oct-2014 8:00 AM EDT
National Dementia Association Launches Awareness Month
Lewy Body American Association of Colleges of Nursing (AACN)Dementia Association

Lewy Body Dementia Association launches month of Awareness. October is LBD Awareness Month, nationwide series of events will take place.

Released: 23-Sep-2014 12:00 PM EDT
National Health Org Unveils “A Day in the Life of Lewy Body Dementia”
Lewy Body American Association of Colleges of Nursing (AACN)Dementia Association

Have you ever wondered what life would be like if you suffered from dementia other than Alzheimer’s disease? Wonder no more. The Lewy Body Dementia Association (LBDA), today, unveils what might be a typical day in the life for caregivers and their loved ones who suffer with Lewy body dementia (LBD), a complex, challenging, and surprisingly common brain disease. LBD families have unique challenges that differ from Alzheimer’s, and awareness is needed by healthcare professionals and the general public to better support them. Judy picks out Bob’s clothes every morning and helped him dress. After a slow, unsteady walk down the stairs, he takes the medicine Judy doles out and later “helps” her dry the breakfast dishes. They go out together some days to run errands, but everything takes longer now because of Bob’s confusion, muscle stiffness, and slow, shuffling walk. Sometimes he can zip his coat up on the first try, but there are days he doesn’t understand

Released: 19-Aug-2014 4:00 PM EDT
National Health Organization Offers Answers to “Lewy Who?” Five Ways to Fight Lewy Body Dementia
Lewy Body American Association of Colleges of Nursing (AACN)Dementia Association

Today, the Lewy Body Dementia Association (LBDA) steps up its awareness and fundraising effort “Lewy Who?” to put the brakes on Lewy body dementia (LBD). With symptoms that resemble both Alzheimer’s and Parkinson’s disease, LBD is the most misdiagnosed form of dementia. Yet, following Alzheimer’s disease, it is the second most common cause of progressive dementia, affecting 1.3 million Americans. Families can fight this debilitating disease while educating others about LBD. LBDA offers five (5) ways to fight: (1) donate, (2) employer matching gifts, (3) plan a community event, (4) volunteer, or (5) partner with LBDA.

Released: 7-Aug-2014 9:00 PM EDT
Most Misdiagnosed Form of Dementia Leaves Patients, Doctors Unprepared
Lewy Body American Association of Colleges of Nursing (AACN)Dementia Association

Even though Lewy body dementia is second only to Alzheimer’s disease as the most common cause of progressive dementia, affecting 1.3 million Americans, the symptoms of LBD are not well recognized by many physicians, especially primary care physicians and other general practitioners. Unfortunately, then, most people are not diagnosed until they are at moderate or severe states, leaving their caregivers unprepared and the patient vulnerable to potentially deadly medication side effects.

Released: 21-Jul-2014 10:00 AM EDT
Caregivers May Face Roller Coaster Effect with Lewy Body Dementia Symptoms
Lewy Body American Association of Colleges of Nursing (AACN)Dementia Association

“I watched my husband experience a decline in cognition followed by a period of what seemed like improved function only to plunge again into confusion with more frequent hallucinations,” says one caregiver newly acquainted with Lewy body dementia (LBD). According to the Lewy Body Dementia Association (LBDA), these ups and downs in function are sometimes refer to by family caregivers as the “roller-coaster effect” of LBD. Fluctuating levels of cognitive ability, attention and alertness are one of the core features of LBD.

Released: 7-Jul-2014 6:10 PM EDT
National Health Org Says Tremors, Shuffling and Confusion May Not Be Parkinson’s but LBD
Lewy Body American Association of Colleges of Nursing (AACN)Dementia Association

Lewy Body Dementia Association (LBDA) highlights the importance of an accurate Lewy body dementia diagnosis, which may have life-saving implications. Affecting more than 1.3 million Americans, Lewy body dementia (LBD) is the most misdiagnosed form of dementia and, following Alzheimer’s disease, is the second most common cause of progressive dementia. LBD is associated with abnormal protein deposits in the brain, called Lewy bodies, that affect thinking, movement, behavior and mood. It’s difficult to diagnose LBD, because its early symptoms resemble those found in Alzheimer’s and Parkinson’s disease.

Released: 19-Jun-2014 12:00 PM EDT
Lewy Body Dementia Assoc Responds to the Passing of Casey Kasem
Lewy Body American Association of Colleges of Nursing (AACN)Dementia Association

The sad news of Casey Kasem’s illness and passing has brought unexpected visibility to a disease unfamiliar to many people. The Lewy Body Dementia Association offers its condolences to the family and friends of Casey Kasem. Mr. Kasem had been suffering from Lewy body dementia (LBD), one of the most debilitating forms of dementia. LBD affects 1.3 million Americans.

Released: 11-Jun-2014 8:00 PM EDT
Lewy Body Dementia Assoc Asks Men to “Rethink” Fitness -- Mental Fitness -- During Men’s Health Week
Lewy Body American Association of Colleges of Nursing (AACN)Dementia Association

The Lewy Body Dementia Association (LBDA) asks men to “rethink” men’s health this week with a focus on mental fitness as well as physical fitness. June 9 through 15, 2014, is Men’s Health Week. With age as a known risk factor for dementia and with a growing population of those ages 65 years and older that’s expected to double from more than 36 million (2004) to more than 71 million by 2030, LBDA discusses men, Lewy body dementia (LBD), and cognitive function.

Released: 6-Jun-2014 8:00 AM EDT
Lewy Body Dementia Assoc Remembers Dads with Dementia for Father’s Day This Month with “Indelible Memories and Unforgettable Moments” Tribute
Lewy Body American Association of Colleges of Nursing (AACN)Dementia Association

Today, the Lewy Body Dementia Association (LBDA), remembers dads with dementia and their caregivers with “Indelible Memories and Unforgettable Moments,” an open tribute to families across America struggling with Lewy body dementia (LBD), Alzheimer’s disease, Parkinson’s disease and nearly 100 other types of dementias.



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