Access to Care, Knowledge About Genetic Testing and Clinical Trials Identified as Key Issues in Landmark Survey of Neuromuscular Community
Muscular Dystrophy Association (MDA)ONEVoice, a landmark survey funded by the Muscular Dystrophy Association (MDA) and conducted by Edge Research, has identified key areas of concern among more than 3,000 respondents – 2,430 adults with neuromuscular disease and 932 caregivers/family members – as well as ways in which many of these concerns can be addressed.