Vasculitis Foundation Establishes “VF Bob Day” February 1, 2018; Celebrating Longtime Volunteer’s Contributions with Global Awareness Initiative
#VFBob social media hashtag promotes need for early diagnosis and better treatments for rare, autoimmune disease
Newswise — In 1993 Bob Sah's father-in-law was diagnosed with vasculitis, a rare autoimmune disease that affects the blood vessels and can lead to debilitating pain, and sometimes death. Eight years later, Bob's wife, Elaine, was diagnosed with the same rare disease and Bob came to the conclusion that vasculitis wasn't just rare, it was rarely diagnosed, leaving patients with permanent health complications.
Sahs, who passed away last year turned his family’s struggles into a personal crusade to create awareness of vasculitis. For over 16 years, he volunteered with the Vasculitis Foundation, the world’s premier organization dedicated to educating physicians, funding research and supporting patients and family members whose lives have been affected by vasculitis. Sahs went from grassroots volunteer to chairing the organization’s board of directors for two years.
To honor Sahs’ memory and celebrate his passion for raising public awareness of vasculitis, the Vasculitis Foundation has established February 1, 2018 as “VF Bob Sahs Day.”
The public is invited to download a "VF Bob" poster from the VF website (www.vasculitisfoundation.org/vfbob), and take selfie photos with VFBob and then posting it on Instagram or Facebook along with the hashtag “VFBob.”
VF Board Member Pamela Pekerman, whose father, Ilya Peckerman, was a vasculitis patient, conceived the ongoing campaign and noted that the web page includes a hashtagged feed so that visitors to the page can see their photos as well as those of others.
Joyce Kullman, the Foundation’s executive director, said that the global initiative offers a creative way to honor Sahs. “Bob always attended VF symposia, chapter events and special fundraisers’, she said.
“He loved to raise awareness of vasculitis and always carried a 6-foot VF banner on his vacations to China, Africa and other exotic destinations,” says Kullman. “Bob always said he would rather carry the banner than clothes in his suitcase.”
Karen Hirsch, president of the Vasculitis Foundation’s Board of Directors, also remembered Bob as a tireless advocate who enjoyed his role. “Bob was a caring advocate for all with vasculitis,” says Hirsch. “He brought his extraordinary wisdom and compassion to the board and led many efforts for many years to advance the mission of the VF. Bob was funny and kind, and he will be greatly missed.”
About the Vasculitis Foundation The Vasculitis Foundation (VF) is the international organization for people with vasculitis. The VF empowers patients through disease education, raises awareness of vasculitis in the public and medical community, and funds research to determine the cause, develop more effective treatments, and discover a cure. The Vasculitis Foundation is committed to improving the lives of current and future patients and is positioned as the definitive resource for patients, family members, medical professionals and researchers seeking information about vasculitis.
For information about vasculitis and the Vasculitis Foundation please visit www.vasculitisfoundation.org.