Sherburne, NY USA

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Drug Approved to Treat Rare Disorder Associated with Anesthesia

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Eagle Pharmaceuticals, Inc. today announced the U. S. Food and Drug Administration (FDA) has approved Ryanodex® (dantrolene sodium) for injectable suspension indicated for the treatment of malignant hyperthermia (MH), along with the appropriate...
23-Jul-2014 4:00 PM EDT

Swimmers Take to Water in Support of Rare Disorder

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MARSHALL, Illinois - The Geoffrey Keller Memorial Open Water Swim held in honor of the late son of Curt and Kathleen Keller to raise funds to research better ways of managing Malignant Hyperthermia (MH) during surgery, to improve methods of...
2-Jul-2014 10:00 AM EDT

MedicAlert Foundation and Rare Disorder Group Provide Free Medical IDs

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MedicAlert Foundation is pleased to announce that individuals living with Malignant Hyperthermia (MH) are now eligible to receive free medical IDs and live 24/7 emergency response services as the result of a grant obtained through the Sandi Ida...
26-Jun-2014 7:30 AM EDT

Ambulatory Anesthesia and Rare Disorder Groups Partner to Save Lives

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The Society of Ambulatory Anesthesia (SAMBA) has partnered with the Malignant Hyperthermia Association of the United States (MHAUS) to offer MHAUS membership benefits to active SAMBA members at a reduced rate.
12-Jun-2014 2:00 PM EDT

Open Water Swim in Marshall, Illinois Highlights Rare Disorder

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The Geoffrey Keller Memorial Open Water Swim held in honor of the late son of Curt and Kathy Keller to raise funds to research better ways of managing Malignant Hyperthermia during surgery, to improve methods of detecting MH, and for MH awareness....
4-Jun-2014 9:05 AM EDT

Nurse Anesthetists and Rare Disorder Group Partner to Save Lives

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The American Association of Nurse Anesthetists (AANA) has partnered with the Malignant Hyperthermia Association of the United States (MHAUS) to offer MHAUS membership benefits at a reduced rate to Certified Registered Nurse Anesthetists who are...
4-Jun-2014 9:00 AM EDT

Experts Say Stocking the Drug Dantrolene Saves Lives and Money

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A substantial number of patients receive care in ambulatory surgical centers. Experts say storing the drug dantrolene at ambulatory surgical centers will save lives and is very cost effective.
3-Jun-2014 8:00 AM EDT

Rare Disorder Groups Ask If You are Affected

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If you are affected by Malignant Hyperthermia, Congenital Muscular Dystrophies or Congenital Myopathy Subtypes, the Malignant Hyperthermia Association of the United States and the Cure Congenital Muscle Disease organization are asking for your help...
12-Mar-2014 10:00 AM EDT

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