Dr. Alina Ivaniuk talks with Dr. Fábio Nascimento about his career path. Director of Washington University’s Adult Tuberous Sclerosis Center Clinic, Dr. Nascimento is co-creator and co-host of EEG Talk, a YouTube channel dedicated to EEG education, and an editor for Epileptic Disorders.
What does it take to define and classify 39 epilepsy syndromes - and why is it important? Find out in the latest episode of Sharp Waves, ILAE's epilepsy podcast.
Neurologists worldwide have concerns about the use of generic anti-seizure medications, including poor or inconsistent quality, limited access, cost, and lack of regulatory control, according to a global survey of health care professionals.
The menstrual cycle influences seizure frequency in about two-thirds of women with epilepsy. This podcast episode explores the impact of sex hormones on epilepsy, including why some women experience fertility problems or polycystic ovarian syndrome (PCOS).
En Ontario, au Canada, un groupe de psychologues et de membres d’un organisme communautaire de soutien à l’épilepsie discutait depuis longtemps de la nécessité d’une éducation sur l’épilepsie pour les enseignants.
We talk with a third-year medical student, a neurology researcher, an avid rock climber, and a young man with epilepsy who had a responsive neurostimulator (RNS) implanted last year. The catch: They’re all the same person.
Children spend a lot of time in school, and that includes children with epilepsy. But most teachers don’t receive training in what epilepsy is, what seizures look like, or what to do if a student has a seizure.
Schools can be important for epilepsy screening, as well as awareness of seizure first aid and basic knowledge. In a rural area of Punjab, a three-year project of surveys and training activities aimed to increase knowledge and dispel myths and misconceptions.
En Ontario, Canadá, un grupo de psicólogos y miembros de una agencia comunitaria de apoyo a la epilepsia habían discutido durante mucho tiempo la necesidad de educación sobre la epilepsia para los maestros de escuela.
Though children spend many hours in school, their teachers often don't have knowledge about epilepsy. Many are afraid of having students with epilepsy in their classes, which can be a barrier to both effective learning and student inclusion.
Though she became involved in epilepsy epigenetics research “by accident,” Katja Kobow is already one of the leading researchers in the field, and the most recent recipient of the prestigious Michael Prize. Sharp Waves talked with her about the prize and her research.
On 27 May 2022, World Health Organization Member States unanimously approved the Intersectoral Global Action Plan on Epilepsy and other Neurological Disorders (IGAP) at the 75th World Health Assembly in Geneva, Switzerland.
Can women with epilepsy get pregnant, give birth to healthy babies, and breastfeed? What are the myths and misconceptions, and what do physicians and women need to know? Dr. Anca Arbune interviews Dr. Page Pennell about the latest research and knowledge.
The World Health Organization's 75th World Health Assembly convenes May 22, with implications for epilepsy and other neurological disorders. Join us for a webinar discussing the member states' vote on the Intersectoral Global Action Plan.
Low-resource areas face multiple challenges to diagnosing and treating long-lasting seizures, or status epilepticus. We talked with neurologists in four countries about how status epilepticus is managed in their areas.
La brecha de tratamiento de la epilepsia en El Salvador es de 60% a 70%. Junto con la concientización sobre la epilepsia y las necesidades educativas, los recursos son una barrera importante para la atención óptima de las personas con epilepsia.
Since the war began in late February, Ukraine neurologists have been committed to helping citizens with epilepsy, many of whom have lost access to medications and regular care.
He set out to research the effect of polar day-night patterns on seizure frequency and epilepsy. He found something he never expected: a public health crisis in one of the wealthiest countries in the world, relevant to geographically isolated communities and Indigenous peoples.
“We don’t have a lot of the basics that other countries have in terms of health infrastructure, or even our own epilepsy statistics. We are trying to build something from scratch.” - epileptologist Ovidio Solano Cabrera
Los estudios estiman que al menos un 25% de las personas con epilepsia padece algún trastorno de ansiedad, sin embargo, la ansiedad esta subdiagnosticada e insuficientemente tratada. Comúnmente se presta más atención a la depresión, posiblemente debido al riesgo de suicidio.
Anti-seizure medications are not a cure, and about 30% of people with epilepsy don't respond to them. How are new medications discovered, and what's on the horizon?
Deep-brain stimulation (DBS) is the newest of three types of neuromodulation for epilepsy. Targeted electrical pulses inhibit a network in the brain involved in starting and spreading seizures. This interference is linked with a reduction in the number and/or severity of seizures.
About 250,000 people in Ukraine have epilepsy, which requires daily medication. But supplies of anti-seizure medications are running low in Ukraine, and nearly 2 million people have fled into neighboring countries, with more likely to follow over the coming weeks.
At least 1 in 4 people with epilepsy will experience anxiety, which can interfere with seizure control and impact quality of life. Epilepsy care providers are uniquely positioned to screen patients for anxiety and discuss treatment options.
Since his 2016 epilepsy diagnosis, Bright M. Bwalya has shared information about epilepsy through radio and TV interviews, education sessions, and a mobile app. He works to correct misinformation and to remind people that "you are not your epilepsy."
Deciding which medication to prescribe for a new epilepsy diagnosis is an issue without much guidance. The second Standard And New Anti-epileptic Drugs study (SANAD II) compared medications for both focal and generalized epilepsies.
In 2018, Zambia had 17 million people and four neurologists. The country's first post-graduate neurology training program is changing the entire country's perceptions of what epilepsy is and how to treat it - one day at a time.
The International Bureau for Epilepsy (IBE) is an epilepsy advocacy organization with nearly 140 chapters in more than 100 countries. ILAE talked with two of its presidents—Martin Brodie (2017-2021) and Francesca Sofia (2021-2025)—about their paths to the presidency and their hopes and plans for the future.
Is becoming president of ILAE a decades-long goal, or a happy surprise? How do leaders develop a leadership style? We sat down with now-Past President Samuel Wiebe (term 2017-2021) and current President J. Helen Cross (term 2021-2025) to talk about these questions and much more.
The International Epilepsy Congress, held August 28 – September 1, 2021, will present a platform to hear from world-renowned experts, and on-demand recordings allow registrants to attend sessions either live (following Central European Standard Time) or at their convenience.
ILAE has published guidelines on classifying seizures and epilepsies, but those classifications don't account for seizures in newborn babies. Two ILAE task forces spent several years on a position paper that modifies the seizure and epilepsy classifications for neonatal seizures.
Al igual que la epilepsia, los episodios paroxísticos no epilépticos (EPNE) interfieren en la vida personal, familiar y social de los pacientes.
Se llaman convulsiones, ataques, eventos, episodios pero no son epilepsia. Conocidos por varios nombres, que incluyen convulsiones disociativas, episodios paroxísticos no epilépticos (EPNE) y convulsiones funcionales, pueden ser difíciles de identificar.
Our Asian & Oceanian Epilepsy Congress, June 10-13, covers it all: social issues, diagnosis, treatment, research, and more. Anyone, anywhere can get a top-level, multi-day epilepsy conference delivered to their home or office and participate at their convenience.
Comme l'épilepsie, les crises non épileptiques psychogènes (CNEP) ont des conséquences sur la scolarisation, l'emploi et l'autonomie.
Le fait de changer le nom des crises psychogènes non épileptiques pourrait-il conduire à une meilleure communication médecin-patient, à une meilleure compréhension et à moins de stigmatisation?
Addressing stigma—from health care professionals, from family members and friends, from the public, and even from patients themselves—is a crucial part of improving care and access to care for people with PNES.
Could changing the name of psychogenic non-epileptic seizures lead to improved physician-patient communication, increased understanding and less stigma?
A recent paper in Neurology Clinical Practice offers practical considerations for using the ketogenic diet in patients with seizures that last more than 24 hours, a condition known as super-refractory status epilepticus. ILAE spoke with two of the authors – dietitian Neha Kaul and epileptologist Joshua Laing.
Un artículo reciente en “Neurology Clinical Practice” ofrece consideraciones prácticas para el empleo de la dieta cetogénica en pacientes con estatus epiléptico superrefractario. La ILAE habló con dos de los autores del artículo. (Podcast en ingles; transcripcion en español.)
La dieta cetogénica está emergiendo como una opción de tratamiento potencial para todas las etapas del estado epiléptico (SE), incluido el estado epiléptico refractario y superrefractario.
The ketogenic diet is emerging as a potential treatment option for all stages of status epilepticus, a condition in which seizures persist for more than several minutes.
Tras la reciente advertencia de seguridad emitida por la Administración de Alimentos y Medicamentos de los Estados Unidos sobre la lamotrigina, un grupo de trabajo ad hoc ha elaborado un documento de revisión acerca de cómo minimizar los riesgos de seguridad.
Following a recent safety warning issued by the US Food and Drug Administration on lamotrigine, a joint task force of the ILAE and American Epilepsy Society published an advisory for health care professionals that discusses how to minimize cardiac-related safety risks in patients taking lamotrigine.
In much of Africa, epilepsy is believed to be caused by evil spirits or curses. Kenyan Fredrick Beuchi is trying to spread the word that epilepsy is a medical condition that can be treated. His latest project to raise awareness: Climb Africa's highest mountain.
A recent one-year study found a 35% decrease in seizure frequency in people with epilepsy who listened to an excerpt of Mozart's Sonata for Two Pianos. Research in animal models also suggests that music has multiple effects on the brain.
More than 75 countries now have at least one ketogenic diet center for the treatment of epilepsy, but most centers are located in high-resource countries. How can lower-income countries establish the ketogenic diet, and what considerations are they facing?
Treating epilepsy with diet is not a new concept, but it's gained popularity and credibility in the past 25 years.
La telemedicina para el cuidado de la epilepsia es más popular que nunca. Tiene muchas ventajas, pero ¿Puede sostenerse en el futuro?
This rare but life-threatening condition is often due to an autoimmune response. Speedier diagnosis and more effective treatments are priorities.
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