Newswise — Although advances in modern medicine have dramatically increased the survival rate for childhood cancer, the diagnosis lasts a lifetime. Few childhood cancer survivors are aware that their health may be affected later on.
According to a recent study published in the New England Journal of Medicine, cancer treatments during childhood can cause long-term health problems such as hearing loss, heart damage, joint problems and memory problems.
Of major concern to health professionals is the fact that very few childhood cancer survivors receive the basic information and education about the various health and psychological problems that could affect their future well-being.
Since information about the late effects of cancer diagnosis and treatment is rapidly increasing, The National Children's Cancer Society (N.C.C.S.) wants to ensure survivors have access to that information -- Information that could enhance the quality of their lives.
"It is estimated that there are over 270,000 survivors of childhood cancer and by the year 2010 it is estimated that one in every 250 young adults will be a childhood cancer survivor," said Stacia Wagner, an N.C.C.S. survivorship specialist and 17 year cancer survivor. "Research shows two-thirds of survivors experience late effects. Because of this, the N.C.C.S. has created a process where they may go to get the information they need."
By visiting http://www.beyondthecure.org, cancer survivors or their caregivers can learn about possible late effects covering medical, educational, fertility, and psychological issues. Information regarding insurance, grief, employment, and spirituality is also available. In addition, survivors can create personal profiles based on their specific diagnosis and treatment.
For survivors such as Heather Barger, the Web site is a welcome resource for unanswered questions. Barger has survived leukemia, its treatment, including two transplants, and a relapse.
Now, 16, she is cancer-free but is dealing with some of the delayed effects of her treatment. Heather and her family successfully turned to the N.C.C.S. for help related to educational problems.
Today, survivors like Barger can get the information they need. For more information on cancer and survivorship issues, please visit http://www.beyondthecure.org.
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